Condition-Specific, Patient-Reported Syndicated Research

Get timely, relevant, patient-reported data and insights that illuminate the patient experience

Health Union conducts two types of condition-specific, syndicated reports covering 40+ conditions: In America and Patient Experience. Choose one or both syndicated reports, uniquely designed to answer important business questions about the patient experience, from patients themselves.

In America

  • Thousands of respondents
  • High-level findings for 50+ conditions
  • Paves the way for a more holistic understanding of patients across multiple comorbidities
  • Separate Rare Disease In America survey fielded to understand specifics related to the rare disease patient experience

Patient Experience

  • Hundreds of respondents
  • IRB-approved
  • In-depth insights into quality of life impact,  unmet needs, HCP dynamics and relationship, disease burden, and treatment experiences
  • Features quota-sampling to better represent important subgroups

View the full range of available condition-specific reports

Sample Sizes for
Advanced Breast Cancer

Sample Sizes for
Advanced Breast Cancer

2023: 281  2022: 486

2023: 281  2022: 486

Sample Sizes for
Advanced Ovarian Cancer

Sample Sizes for
Advanced Ovarian Cancer

2023: 166  2022: 205  2021: 153

2023: 166  2022: 205  2021: 153

Sample Sizes for Allergies

Sample Sizes for Allergies

2023: 3,006  2021: 1,021

2023: 3,006  2021: 1,021

Sample Sizes for
Alzheimer’s Disease

Sample Sizes for Alzheimer’s
Disease

2023: 500

2023: 500

Sample Sizes for Asthma

Sample Sizes for Asthma

2023: 1,536  2021: 1,045

2023: 1,536  2021: 1,045

Sample Sizes for
Atopic Dermatitis

2023: 556  2021: 770

2023: 556  2021: 770

Sample Sizes for
Axial Spondyloarthritis

Sample Sizes for
Axial Spondyloarthritis

2023: 681  2021: 1,009

2023: 681  2021: 1,009

Sample Sizes for
Bladder Cancer

Sample Sizes for
Bladder Cancer

2023: 465

2023: 465

Sample Sizes
for Blood Cancer

Sample Sizes for
Blood Cancer

Acute Myeloid Leukemia

2023: 81  2022: 71  2021: 82


Chronic Lymphocytic Leukemia

2023: 244  2022: 203  2021: 236


Chronic Myelogenous Leukemia

2023: 91  2022: 74  2021: 120


Multiple Myeloma

2023: 332  2022: 313  2021: 370


Myelodysplastic Syndromes

2023: 91  2022: 87  2021: 84


Myeloproliferative Neoplasms

2023: 117  2022: 193  2021: 250


Non-Hodgkin Lymphoma

2023: 246  2022: 3,216  2021: 288

Acute Myeloid Leukemia

2023: 81  2022: 71  2021: 82


Chronic Lymphocytic Leukemia

2023: 244  2022: 203  2021: 236


Chronic Myelogenous Leukemia

2023: 91  2022: 74  2021: 120


Multiple Myeloma

2023: 332  2022: 313  2021: 370


Myelodysplastic Syndromes

2023: 91  2022: 87  2021: 84


Myeloproliferative Neoplasms

2023: 117  2022: 193  2021: 250


Non-Hodgkin Lymphoma

2023: 246  2022: 3,216  2021: 288

Sample Sizes for MM
Patient Experience

Sample Sizes for MM
Patient Experience

2023: TBD

2023: TBD

Sample Sizes for
Chronic Dry Eye

Sample Sizes for
Chronic Dry Eye

2023: 1,732  2022: 246  2021: 415

2023: 1,732  2022: 246  2021: 415

Sample Sizes for
Chronic Hives

Sample Sizes for
Chronic Hives

2023: 140  2022: 201

2023: 140  2022: 201

Sample Sizes for COPD

Sample Sizes for COPD

2023: 4,073  2022: 1,802 

2023: 4,073  2022: 1,802 

Sample Sizes for
Cystic Fibrosis

Sample Sizes for
Cystic Fibrosis

2023: 170  2022: 230 

2023: 170  2022: 230 

Sample Sizes for Endometriosis

Sample Sizes for Endometriosis

2023: 735  2021: 1,027

2023: 735  2021: 1,027

Sample Sizes for Epilepsy

Sample Sizes for Epilepsy

2023: 556  2022: 308  2021: 415

2023: 556  2022: 308  2021: 415

Sample Sizes for
Heart Failure

Sample Sizes for
Heart Failure

2023: 768  2021: 846

2023: 768  2021: 846

Sample Sizes for Hepatitis C

Sample Sizes for Hepatitis C

2023: 151  

2023: 151  

Sample Sizes for
Hidradenitis Suppurativa

Sample Sizes for
Hidradenitis Suppurativa

2023: 304  2021: 438

2023: 304  2021: 438

Sample Sizes for HIV

Sample Sizes for HIV

2023: 404  2022: 426 

2023: 404  2022: 426 

Sample Sizes for IBD

Sample Sizes for IBD

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

Sample Sizes for IBS

Sample Sizes for IBS

2023: 2,641  2022: 1,478

2023: 466  2022: 428

Sample Sizes for
Lung Cancer (NSCLC)
In America

Sample Sizes for
Lung Cancer (NSCLC)
In America

2023: 466  2022: 428

2023: 2,641  2022: 1,478

Sample Sizes for
Lung Cancer (NSCLC)
Patient Experience

Sample Sizes for
Lung Cancer (NSCLC)
Patient Experience

2023: TBD

2023: TBD

Sample Sizes for Lupus
In America

Sample Sizes for Lupus
In America

2023: 902  2021: 836

2023: 902  2021: 836

Sample Sizes for Lupus
Patient Experience

Sample Sizes for Lupus
Patient Experience

2023: 400

2023: 400

Sample Sizes for
Macular Degeneration

Sample Sizes for
Macular Degeneration

2023: 924

2023: 924

Sample Sizes for Migraine
In America

Sample Sizes for Migraine
In America

2023: 4,416  2022: 4,249  2021: 4,992

2023: 4,416  2022: 4,249  2021: 4,992

Sample Sizes for Migraine
Patient Experience

Sample Sizes for Migraine
Patient Experience

2023: 500

2023: 500

Sample Sizes for
Multiple Sclerosis

Sample Sizes for
Multiple Sclerosis

2023: 3,883  2022: 4,478  2021: 4,525

2023: 3,883  2022: 4,478  2021: 4,525

Sample Sizes for
Myasthenia Gravis

Sample Sizes for
Myasthenia Gravis

2023: 662  2022: 547  2021: 600

2023: 662  2022: 547  2021: 600

Sample Sizes for NMOSD

Sample Sizes for NMOSD

2023: 66  2022: 61

2023: 66  2022: 61

Sample Sizes for
Parkinson’s Disease

Sample Sizes for
Parkinson’s Disease

2023: 1,611  2022: 1,169

2023: 66  2022: 61

Sample Sizes for
Prostate Cancer

Sample Sizes for
Prostate Cancer

2023: 978  2022: 765

2023: 978  2022: 765

Sample Sizes for Psoriasis

Sample Sizes for Psoriasis

2023: 490  2022: 818  2021: 1,123

2023: 490  2022: 818  2021: 1,123

Sample Sizes for
Psoriatic Arthritis

Sample Sizes for
Psoriatic Arthritis

2023: 1,160  2022: 819  2021: 973

2023: 1,160  2022: 819  2021: 973

Sample Sizes for
Rare Disease

Sample Sizes for
Rare Disease

2023: 494  

2023: 494

Sample Sizes for
Rheumatoid Arthritis

Sample Sizes for
Rheumatoid Arthritis

2023: 2,842  2022: 2,674  2021: 3,856

2023: 2,842  2022: 2,674  2021: 3,856

Sample Sizes for
Sickle Cell Disease

Sample Sizes for
Sickle Cell Disease

2023: 155  2022: 82  2021: 111

2023: 155  2022: 82  2021: 111

Sample Sizes for
Skin Cancer (Melanoma)

Sample Sizes for
Skin Cancer (Melanoma)

2023: 378

2023: 378

Sample Sizes for
Sleep Disorders In America
– Sleep Apnea

Sample Sizes for
Sleep Disorders In America
– Sleep Apnea

2023: 1,734  2021: 734

2023: 1,734  2021: 734

Sample Sizes for
Sleep Disorders In America
– Insomnia

Sample Sizes for
Sleep Disorders In America
– Insomnia

2023: 2,713  2021: 508

2023: 2,713  2021: 508

Sample Sizes for
Sleep Disorders In America
– Narcolepsy

Sample Sizes for
Sleep Disorders In America
– Narcolepsy

2023: 349  2021: 177

2023: 349  2021: 177

Sample Sizes for
Sleep Disorders In America
– RLS

Sample Sizes for
Sleep Disorders In America
– RLS

2023: 898  2021: 317

2023: 898  2021: 317

Sample Sizes for
Spinal Muscular Atrophy

Sample Sizes for
Spinal Muscular Atrophy

2023: 83  2022: 54

2023: 83  2022: 54

Sample Sizes for
Thyroid Eye Disease

Sample Sizes for
Thyroid Eye Disease

2023: 154  2022: 100

2023: 154  2022: 100

Sample Sizes for
Type 2 Diabetes

Sample Sizes for
Type 2 Diabetes

2023: 2,435

2023: 2,435

FAQs

Surveys are fielded within each condition-specific online health community website and promoted via email, Facebook and other social media channels associated with the particular community.

Health Union conducts the In America survey every year, as well as up to four condition-specific Patient Experience surveys. Conditions of focus for Patient Experience surveys are selected based on anticipated changes in treatment landscape or promising clinical trials/research, so that an updated understanding of the patient experience can support evolving condition dynamics.

Primarily, the data collected is used to inform the content strategy and topics of interest for the community. Results are shared back to the community in many different forms to encourage engagement.

The data is also analyzed to develop custom media programs designed to reach the right people in the right moment with highly relevant advertising.

The aggregate survey data can be purchased as a syndicated study to interested partners who want to learn more about patient or caregiver experiences with a given condition. As with all syndicated studies, results are shared on aggregate; individual responses are confidential and never shared or sold for any reason.

There is no paid incentive for completing an In America survey. Respondents who complete the longer, more in-depth Patient Experience survey are provided an incentive. In both cases, each person that takes a survey contributes to a better understanding of their condition and can help others feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey can be, as well as the differences that make each journey unique. 

Yes! Health Union publishes data in peer-reviewed journals and at industry and condition-specific conferences to advance the knowledge and understanding of the patient and caregiver experience. Visit our publications page to read more. 

There are a range of options available. For more information, please fill out the form at the bottom of this page.

Yes, Health Union has a full-service marketing research insights team. For more information, please fill out the form at the bottom of this page.

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