A new national survey by Health Union of more than 1,000 individuals with Irritable Bowel Syndrome (IBS) reveals that the condition is difficult to diagnose and often even more difficult to treat. Respondents often found healthcare providers and the public in general lacking in empathy and understanding of the full impact of the disease. Self-treatment often becomes the norm and controlling symptoms difficult.
A new survey from Health Union of more than 2,200 people with chronic health conditions and their caregivers illustrates how patients use online health information to better understand their health condition, learn about symptoms and treatment, and share experiences with other patients living with the same health condition. The findings are summarized in a recently published white paper, entitled “Social Media for Health: What Patients Really Want.”
Asthma patients report most frequently using rescue inhalers for treatment, showing the difficult path many people have prior to being correctly diagnosed.
In a new national survey of Crohn’s disease patients, Health Union reveals that it was not uncommon for patients to see multiple healthcare professionals (HCPs), have numerous office visits, and endure multiple diagnostic tests before receiving a diagnosis. Results demonstrate an impact on such things as the ability to work or exercise, but also on overall quality of life and social activities. Respondents wished more people understood the disease and its impact.
Health Union recently had the unique opportunity to collaborate with Amy Wachholtz, PhD and Christopher Malone, from the University of Massachusetts Medical School, to publish findings from the 2012 Migraine In America study. Their interest in understanding the psychological and social impact of migraine was particularly exciting to me, as we at Health Union know first-hand how severely migraine can affect the lives of our community members. Increasing overall awareness regarding this impact is critical for ensuring that individuals with migraine receive the best possible care.
In a new national survey of chronic obstructive pulmonary disease (COPD) patients, Health Union reveals a surprising lack of awareness of risk factors and knowledge of diagnosis stage among patients. Results demonstrate a severe impact on quality of life, employment, and ability to afford treatment.
Researchers found a severe impact on quality of life, employment, and ability to afford treatment for people living with rheumatoid arthritis.
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