Living With & Finding Strength

Every chronic and life-threatening condition comes with its own symptoms & challenges, and while each individual’s experience is unique, there is wisdom to be found in learning how others have faced their challenges and how they have found strength to continue.

For our 50th episode, hear how several of our contributors have found strength as they face incredible challenges: Will Jones (ProstateCancer.net), Abigail Johnston (AdvancedBreastCancer.net), Wren Vandever (RheumatoidArthritis.net), Angela and Karl Robb (ParkinsonsDisease.net), Lorene Alba (Asthma.net), Jed Finley (AnkylosingSpondylitis.net and AxialSpondyloarthritis.net), and Diane Talbert (PlaquePsoriasis.com and Psoriatic-Arthritis.com).

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To hear more from these guests featured on this episode, listen to their condition-specific experiences on other Living With podcast episodes: Will, Abigail, Wren, Angela & Karl, Lorene, Jed, and Diane.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

Living With & Finding Strength

 
 
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Living With CML: Brian Boyle

Brian Boyle is a professional hockey player who is living with Philadelphia-chromosome-positive chronic myeloid leukemia in chronic phase (Ph+ CML-CP). He shares how he coped with the diagnosis and the importance of support along the way. This episode is sponsored by Novartis, and Brian has been compensated by Novartis for participating. Brian’s story is based on his experience with Ph+ CML and is not intended to be representative of others’ experience. Please see the full Prescribing Information, including the Boxed WARNING and medication guide, available at https://bit.ly/38GEubJ. 12/20 AM7-1239628

Living With CML: Brian Boyle

 
 
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Living With Cystic Fibrosis: Megan B

Megan Barlow was diagnosed with cystic fibrosis (CF) at the age of 5. Now 28, she describes what it’s like to live with CF and how advances in treatment have made a huge difference in her quality of life.

Living With Cystic Fibrosis: Megan B

 
 
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Living With Endometriosis: Fela D

Fela Dunfee from Endometriosis.net talks about life with endometriosis, chronic pain, and talking with others about your condition, including talking to your partner about how your sex life is impacted in this podcast episode.

For more information, check out another episode of the Living With podcast about endometriosis with Jessie M.

 

Living With Endometriosis: Fela D

 
 
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Living With Asthma: John B

John Bottrell has been living with asthma all his life and contributes to Asthma.net. He shares about his experiences of avoiding triggers, how asthma has impacted his life and career, and the importance of finding a community of others with asthma.

For further listening about experiences with asthma, check out another Living With podcast interview with Lorene A.

Living With Asthma: John B

 
 
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Living With Advanced Breast Cancer: Abigail J

After receiving a diagnosis of metastatic breast cancer at the age of 38, Abigail Johnston has drastically changed her life to maximize her time with her family, optimize her health and well-being, and use her experience as a lawyer and advocate to help others with metastatic breast cancer and other advanced Stage IV cancers. Listen to her podcast interview on Living With to learn how she faces incredible health challenges with grace and determination.

Living With is a podcast by Health Union hosted by Emily Downward that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

For further listening, check out Susan R’s episode of the Living With podcast on advanced and metastatic breast cancer.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

Living With Advanced Breast Cancer: Abigail J

 
 
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Living With Ankylosing Spondylitis: Jed F

Jed Finley is a special education teacher and has been living with ankylosing spondylitis since the age of 12. He shares what his life is like with AS and how he’s found purpose through his condition.

Living With Ankylosing Spondylitis: Jed F

 
 
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Living With RA: Kelly M

If you were to pass Kelly Mack on the street, you might not notice her – as she has said, she often struggles with being “seemingly invisible.” Kelly is a petite woman who zooms around on what she describes as a “hot-rod” wheelchair. And while that might be what you see, or choose not to see, she is so much more than just a person with a disability. It’s worth taking the time to get to know Kelly, as her relentless positivity and optimism while coping with a life-long chronic and painful condition are inspiring. Hear more about her experiences and story with rheumatoid arthritis in this podcast interview.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience offer wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

For further listening, check out another episode of the Living With podcast on rheumatoid arthritis with Wren V.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

Living With RA: Kelly M

 
 
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Living With Diabetes: Toby S

Toby Smithson personally lives with diabetes and helps others with diabetes through her work as a registered dietician and certified diabetes educator, as well as her contributions to Type2Diabetes.com. In addition to sharing her personal story, she talks about ways to make diabetes management easier in this podcast interview.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

For further listening, check out Rachel F’s episode of the Living With podcast about diabetes.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

Living With Diabetes: Toby S

 
 
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Living With & Working

When you live with a chronic condition, it can affect every area of your life, including your work. Hear from six Health Union contributors —  Jed Finley (AnkylosingSpondylitis.net), Jaime Holland (InflammatoryBowelDisease.net and PlaquePsoriasis.com), Hess Polanco (IrritableBowelSyndrome.net), Kerrie Smyres (Migraine.com), Simon Lord (ProstateCancer.net), and Kelly Mack (RheumatoidArthritis.net) — on how a chronic condition or a life-changing diagnosis has impacted their work.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To hear more from these guests featured on this episode, listen to their condition-specific experiences on other Living With podcasts episodes: Jed F on Ankylosing Spondylitis, Hess P on IBS, Kerrie S on Migraine, Simon L on prostate cancer, and Kelly M on rheumatoid arthritis.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

Living With & Working

 
 
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