Living With & Working

When you live with a chronic condition, it can affect every area of your life, including your work. Hear from six Health Union contributors —  Jed Finley (AnkylosingSpondylitis.net), Jaime Holland (InflammatoryBowelDisease.net and PlaquePsoriasis.com), Hess Polanco (IrritableBowelSyndrome.net), Kerrie Smyres (Migraine.com), Simon Lord (ProstateCancer.net), and Kelly Mack (RheumatoidArthritis.net) — on how a chronic condition or a life-changing diagnosis has impacted their work.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To hear more from these guests featured on this episode, listen to their condition-specific experiences on other Living With podcasts episodes: Jed F on Ankylosing Spondylitis, Hess P on IBS, Kerrie S on Migraine, Simon L on prostate cancer, and Kelly M on rheumatoid arthritis.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With & Working
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Living With IBS: Hess P

Hess Polanco is one of Health Union’s contributors to  IrritableBowelSyndrome.net. In this podcast interview, he talks about the stigma of IBS, why it’s important to speak about the condition, as well as how IBS affects him on a daily basis.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

Listen to another episode of the Living With podcast with Hannah N to further learn about IBS experiences.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With IBS: Hess P
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Living With Prostate Cancer: Simon L

Simon Lord was diagnosed with prostate cancer at the age of 50. Fortunately, it was found at an early stage and successfully treated. In this podcast episode, he shares his experience with prostate cancer, which inspired him to make changes in his career, and his approach offers inspiration to others facing a difficult diagnosis.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To listen further, check out other Living With podcast episodes about prostate cancer with Will J and Doug S.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With Prostate Cancer: Simon L
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Living With Multiple Myeloma: Cindy C

Cindy Chmielewski has been living with multiple myeloma, a form of blood cancer, since 2008. She goes by the handle “Myeloma Teacher” online, sharing information about the disease, research updates, and resources for people with myeloma. In our podcast interview, she spoke about her path to diagnosis, the value of being an empowered patient, and how she continues to live life at the edge of her comfort zone.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To hear more on the experiences of people living with blood cancer, check out other Living With podcast episodes with Daniel M who was diagnosed with lymphoma and Ronni G who was diagnosed with acute myeloid leukemia.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With Multiple Myeloma: Cindy C
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Living With Psoriatic Disease: Alisha B

Alisha Bridges has been living with psoriasis since childhood, and in this podcast interview, she shares how she navigated growing up with the added the challenges of psoriatic disease. She has found strength and confidence through her experience, and she now helps others through her volunteer and advocacy work.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic condition. Contributors to Health Union communities share how they cope with trying symptoms and treatments, as well as how their daily lives are impacted by their health conditions. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

For more, listen to another Living With podcast interview about psoriasis with Diane T.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With Psoriatic Disease: Alisha B
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Living With & Dating

This special episode of the Living With podcast is focused on how living with a chronic condition impacts dating. In this episode, you can hear from four Health Union contributors: Marisa Lauren Troy, who lives with inflammatory bowel disease (IBD); Alicia Bridges, who lives with plaque psoriasis and psoriatic arthritis; Rick Nash, who lived with hepatitis C for years and is a liver transplant recipient; and Samantha Mixon, who lives with metastatic lung cancer. Listen to hear their stories, the challenges, and the laughter, as they share how they approach dating while living with a chronic condition.

To hear more from the guests featured on this episode of the Living With podcast, check out their experiences on condition-specific episodes: Marisa on IBD, Alicia on psoriasis, and Rick on hepatitis C.

You can subscribe to Living With through Apple PodcastsGoogle PlayBlubrry, or on Spotify.

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Living With & Dating
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Living With Lung Cancer: Jill & Ivy

Jill Feldman and Ivy Elkins are friends, fellow advocates, and contributors on LungCancer.net. In this episode of the Health Union podcast Living With, Ivy & Jill share their stories of diagnosis, how advocacy helps them cope with the uncertainty of living with lung cancer, and how personal choices have helped them take back some control over their bodies and how they view this disease.

Listen to more from the Living With podcast to hear from other Health Union advocates on how they cope with trying symptoms and treatments. Their courage and and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge. You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

For more on people’s experiences with lung cancer, listen to Jeffrey P’s Living With podcast episode.

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Living With Lung Cancer: Jill & Ivy
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Living With Macular Degeneration: Cora Lyn S

Macular degeneration is the leading cause of vision loss in the U.S., although treatment and lifestyle approaches can help slow the progression of the disease. In this episode of the Living With podcast, Cora Lyn Sears talks about diagnosis and treatment for macular degeneration. While she’s had to give up some of her hobbies due to vision changes, she takes an active role in her health and in making the most of the present.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic health condition. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

Learn more about experiences living with macular degeneration by exploring results from the Macular Degeneration In America patient-generated survey.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With Macular Degeneration: Cora Lyn S
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Living With COPD: Michelle V

For Michelle Vincent, receiving a diagnosis of COPD at the age of 42 completely changed her world. While she is unable to do many of the things that used to fill her days, as she shares in this podcast interview, she has found new hobbies and interests thanks to her experience with COPD that help keep her spirits up.

Living With is a podcast by Health Union that explores what it’s like to live with a chronic health condition. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

Interested in further learning about the experiences of living with COPD? Listen to this interview with Janet P., in another episode of the Living With podcast on COPD.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With COPD: Michelle V
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Living With Psoriasis: Chris P

Chris Pettit has had psoriasis since he was a teen — although he didn’t always know what he had was more than dry skin. In this episode of the Living With podcast, Chris shares how he became more educated and began to advocate for himself and others living with psoriasis. As Chris said, “it’s a full body disease, not just a skin condition.”

Living With is a podcast by Health Union that explores what it’s like to live with a chronic health condition. Advocates from different Health Union communities are interviewed, sharing how they have learned to cope with trying symptoms and treatments. Their courage and resilience are inspiring, offering wisdom that transcends dealing with health issues and gives insight on how best to deal with any kind of challenge.

To hear more insights into the experiences of people living with psoriasis, listen to Diane T.’s Living With podcast interview.

You can subscribe to Living With through Apple Podcasts, Google Play, Blubrry, or on Spotify.

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Living With Psoriasis: Chris P
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