PUBLICATIONS
Perceived treatment satisfaction and effectiveness facilitators among patients with chronic health conditions: A self-reported survey
TREATMENT EXPERIENCES
Does complementary and alternative medicine (CAM) use reduce negative life impact of headaches for chronic migraineurs? A national survey
/in Publications, Treatment Experiences /by Lina KirbyThis manuscript was published in SpringerPlus in 2016 with University of Massachusetts/UMass Memorial Medical Center partners, showcasing Health Union’s Migraine In America 2014 survey data.
Negative Impact of Migraine and Complementary and Alternative Medicine (CAM) Treatments
/in Publications, Treatment Experiences /by Lina KirbyThis poster was accepted and presented at the World Federation of Mental Health 2015 in Singapore, featuring data from Health Union’s Migraine In America 2014 survey.
Prescription Opioid Medication Use Among People with Migraine: National Survey Results
/in Publications, Treatment Experiences /by Lina KirbyThis poster presentation using data from Health Union’s Migraine In America 2015 survey, in partnership with University of Massachusetts/UMass Memorial Medical Center and University of Colorado – Denver, was accepted at the Society for Behavioral Medicine – 2017 Annual Meeting.
Exploring the negative impact of migraine and the impact of alternative medicine treatments
/in Publications, Treatment Experiences /by Lina KirbyThe following manuscript, done in partnership with University of Massachusetts/UMass Memorial Medical Center, was accepted at the World Federation for Mental Health – 2015 Regional Congress.
Biologic DMARD Use Among U.S. Patients in an Online Rheumatoid Arthritis Community
/in Publications, Treatment Experiences /by Lina KirbyThe following abstract on biologic use among U.S. rheumatoid arthritis patients was done in partnership with client Eli Lilly and was accepted for the 2016 ACR/ARHP Annual Meeting.
PATIENT JOURNEY
Fibromyalgia Family and Relationship Impact Exploratory Survey
/in Patient Journey, Publications /by Lina KirbyThis manuscript was published in Musculoskeletal Care in 2012 in partnership with University of Pittsburgh, highlighting data from Health Union’s Fibromyalgia Relationship Impact Survey.
Spirituality and Chronic Migraines
/in Patient Journey, Publications /by Lina KirbyThis abstract was accepted at the American Psychological Association Convention in partnership with Chung-Ang University and University of Colorado, featuring data from Migraine In America 2015 data.
The Chronic Migraine Experience
/in Patient Journey, Publications /by Lina KirbyThis poster was accepted at the Society for Behavioral Medicine – 2016 Annual Meeting showcasing data from Health Union’s Migraine In America 2014 survey, in partnership with University of Massachussetts/UMass Memorial Medical Center.
Correlates of Healthcare-Seeking Behavior During Relapse Among Patients with Multiple Sclerosis
/in Patient Journey, Publications /by Lina KirbyAn abstract from Health Union focused on multiple sclerosis patients and healthcare-seeking behavior was accepted to the American Neurological Association 2018 Conference.
Differentiating characteristics of patients seeking a second opinion: A survey on non-small cell lung cancer patients
/in Patient Journey, Publications /by Lina KirbyHealth Union, LLC has been accepted for a poster presentation at the IASLC 19th World Conference on Lung Cancer (WCLC) in Toronto. The poster, titled “Differentiating Characteristics of Patients Seeking a Second Opinion: A Survey on Non-Small Cell Lung Cancer Patients,” will be presented on Sept. 25.
HEALTHCARE PROFESSIONAL EXPERIENCES
Relapse prevalence, symptoms, and health care engagement: patient insights from the Multiple Sclerosis in America 2017 survey
/in Healthcare Professional Experiences, Publications /by Lina KirbyUnderestimation of relapse in multiple sclerosis (MS) is detrimental to the patient as well as to their relationship with their MS healthcare professional (HCP). To obtain direct insight into relapse prevalence, symptoms, and HCP engagement from patients with MS who responded to the MS in America (MSIA) 2017 survey.
Patient-reported experiences regarding healthcare-related cost discussions with their healthcare professionals
/in Healthcare Professional Experiences, Publications /by Lina KirbyHealthcare-related costs are an important concern for many patients, especially those with chronic conditions. Financial conversations can be uncomfortable and/or embarrassing for many patients. While healthcare professionals (HCPs) are aware of financial concerns, time and other barriers may prevent them from addressing these issues.
QUALITY OF LIFE
Fibromyalgia comorbidity in a community sample of adults with migraine
/in Publications, Quality of Life /by Lina KirbyPublished in Clinical Rheumatology in 2013, this manuscript was written with an external partner from University of Pittsburgh.
Migraine: treatments, comorbidities, and quality of life, in the USA
/in Publications, Quality of Life /by Lina KirbyThis manuscript was published in 2015 in the Journal of Pain Research with partners from University of Massachusetts/UMass Memorial Medical Center. The manuscript features data from Health Union’s Migraine In America 2012 survey data.
The Chronic Migraineur and Health Services: National Survey Results
/in Publications, Quality of Life /by Lina KirbyPublished in the Journal of Pain Management and Medicine in 2015 with partners from the University of Massachusetts/UMass Memorial Medical Center, this manuscript features data from Health Union’s Migraine In America 2014.
Impact of Employment Status on Health-Related Quality of Life for People Living with Autoimmune Conditions
/in Publications, Quality of Life /by Lina KirbyThis abstract was accepted and presented at the International Society for Quality of Life Research 2017, featuring data from Health Union’s PsA, RA, IBD, Plaque Psoriasis & MS 2016 In America surveys.
The relationship between smoking and migraine frequency: the moderating effect of locus of control
/in Publications, Quality of Life /by Lina KirbyThis poster on the relationship between smoking and migraine frequency was accepted at the American Psychological Association Convention, using survey data from Migraine In America 2015 and done in partnership with University of Colorado – Denver.
More is not Always Better: An Epidemiological Assessment of Migraine Frequency and the Impact on Relationships
/in Publications, Quality of Life /by Lina KirbyA manuscript from Health Union was published in the Journal of Pain Management and Medicine in 2017 focusing on migraine and its impact on relationships and quality of life.
ONLINE HEALTH COMMUNITIES
Migraine Frequency But Not Self-Efficacy Drives Utilization and Impact From Online Resources
/in Online Health Communities, Publications /by Lina KirbyPublished in Headache: The Journal of Head and Face Pain in 2012, this Letter to the Editor was written in partnership with University of Pittsburgh.
Using Qualitative Analysis to Assess a Model of Support for Online Health Communities for People Living with Chronic Health Conditions
/in Online Health Communities, Publications /by Lina KirbyThis poster presentation was accepted to be shown at the Connected Health Conference (IIMR) in Boston, MA and showcases qualitative data from Health Union’s community sites and Facebook pages.
Facebook…the destination for health information? Understanding chronic disease patients use of social media and online health information
/in Online Health Communities, Publications /by Lina KirbyThis abstract was accepted for a roundtable discussion at the APHA Conference 2017 using information from Health Union’s Online Health Information survey.
Online Health Communities: A New Frontier in Health Research
/in Online Health Communities, Publications /by Lina KirbyAccepted and presented at the DIA 2017 Conference.
OTHER
Survey of Migraine Sufferers With Dogs to Evaluate for Canine Migraine-Alerting Behaviors
/in Other, Publications /by Lina KirbyThis manuscript was published in The Journal of Alternative and Complementary Medicine in 2013 and written in partnership with University of Pittsburgh.
Migraine-alerting behaviors in dogs living with migraineurs
/in Other, Publications /by Lina KirbyThis poster was accepted and presented at the EFNS – European Academy of Neurology featuring Health Union survey data, done in partnership with University of Pittsburgh.
