PUBLICATIONS

Perceived treatment satisfaction and effectiveness facilitators among patients with chronic health conditions: A self-reported survey

Health Union, LLC has been accepted for an oral presentation at the 2018 Annual Meeting & Expo of the American Public Health Association (APHA) in San Diego. The presentation, based on the abstract titled “Perceived treatment satisfaction and effectiveness facilitators among patients with chronic health conditions: A self-reported survey,” will occur at 3 p.m. on Nov. 12.

TREATMENT EXPERIENCES

Does complementary and alternative medicine (CAM) use reduce negative life impact of headaches for chronic migraineurs? A national survey

This manuscript was published in SpringerPlus in 2016 with University of Massachusetts/UMass Memorial Medical Center partners, showcasing Health Union’s Migraine In America 2014 survey data.

Negative Impact of Migraine and Complementary and Alternative Medicine (CAM) Treatments

This poster was accepted and presented at the World Federation of Mental Health 2015 in Singapore, featuring data from Health Union’s Migraine In America 2014 survey.

Prescription Opioid Medication Use Among People with Migraine: National Survey Results

This poster presentation using data from Health Union’s Migraine In America 2015 survey, in partnership with University of Massachusetts/UMass Memorial Medical Center and University of Colorado – Denver, was accepted at the Society for Behavioral Medicine – 2017 Annual Meeting.

Exploring the negative impact of migraine and the impact of alternative medicine treatments

The following manuscript, done in partnership with University of Massachusetts/UMass Memorial Medical Center, was accepted at the World Federation for Mental Health – 2015 Regional Congress.

Biologic DMARD Use Among U.S. Patients in an Online Rheumatoid Arthritis Community

The following abstract on biologic use among U.S. rheumatoid arthritis patients was done in partnership with client Eli Lilly and was accepted for the 2016 ACR/ARHP Annual Meeting.

PATIENT JOURNEY

Fibromyalgia Family and Relationship Impact Exploratory Survey

This manuscript was published in Musculoskeletal Care in 2012 in partnership with University of Pittsburgh, highlighting data from Health Union’s Fibromyalgia Relationship Impact Survey.

Spirituality and Chronic Migraines

This abstract was accepted at the American Psychological Association Convention in partnership with Chung-Ang University and University of Colorado, featuring data from Migraine In America 2015 data.

The Chronic Migraine Experience

This poster was accepted at the Society for Behavioral Medicine – 2016 Annual Meeting showcasing data from Health Union’s Migraine In America 2014 survey, in partnership with University of Massachussetts/UMass Memorial Medical Center.

Correlates of Healthcare-Seeking Behavior During Relapse Among Patients with Multiple Sclerosis

An abstract from Health Union focused on multiple sclerosis patients and healthcare-seeking behavior was accepted to the American Neurological Association 2018 Conference.

Differentiating characteristics of patients seeking a second opinion: A survey on non-small cell lung cancer patients

Health Union, LLC has been accepted for a poster presentation at the IASLC 19th World Conference on Lung Cancer (WCLC) in Toronto. The poster, titled “Differentiating Characteristics of Patients Seeking a Second Opinion: A Survey on Non-Small Cell Lung Cancer Patients,” will be presented on Sept. 25.

HEALTHCARE PROFESSIONAL EXPERIENCES

Relapse prevalence, symptoms, and health care engagement: patient insights from the Multiple Sclerosis in America 2017 survey

Underestimation of relapse in multiple sclerosis (MS) is detrimental to the patient as well as to their relationship with their MS healthcare professional (HCP). To obtain direct insight into relapse prevalence, symptoms, and HCP engagement from patients with MS who responded to the MS in America (MSIA) 2017 survey.

Patient-reported experiences regarding healthcare-related cost discussions with their healthcare professionals

Healthcare-related costs are an important concern for many patients, especially those with chronic conditions. Financial conversations can be uncomfortable and/or embarrassing for many patients. While healthcare professionals (HCPs) are aware of financial concerns, time and other barriers may prevent them from addressing these issues.

QUALITY OF LIFE

Fibromyalgia comorbidity in a community sample of adults with migraine

Published in Clinical Rheumatology in 2013, this manuscript was written with an external partner from University of Pittsburgh.

Migraine: treatments, comorbidities, and quality of life, in the USA

This manuscript was published in 2015 in the Journal of Pain Research with partners from University of Massachusetts/UMass Memorial Medical Center. The manuscript features data from Health Union’s Migraine In America 2012 survey data.

The Chronic Migraineur and Health Services: National Survey Results

Published in the Journal of Pain Management and Medicine in 2015 with partners from the University of Massachusetts/UMass Memorial Medical Center, this manuscript features data from Health Union’s Migraine In America 2014.

Impact of Employment Status on Health-Related Quality of Life for People Living with Autoimmune Conditions

This abstract was accepted and presented at the International Society for Quality of Life Research 2017, featuring data from Health Union’s PsA, RA, IBD, Plaque Psoriasis & MS 2016 In America surveys.

The relationship between smoking and migraine frequency: the moderating effect of locus of control 

This poster on the relationship between smoking and migraine frequency was accepted at the American Psychological Association Convention, using survey data from Migraine In America 2015 and done in partnership with University of Colorado – Denver.

More is not Always Better: An Epidemiological Assessment of Migraine Frequency and the Impact on Relationships

A manuscript from Health Union was published in the Journal of Pain Management and Medicine in 2017 focusing on migraine and its impact on relationships and quality of life.

ONLINE HEALTH COMMUNITIES

Migraine Frequency But Not Self-Efficacy Drives Utilization and Impact From Online Resources

Published in Headache: The Journal of Head and Face Pain in 2012, this Letter to the Editor was written in partnership with University of Pittsburgh.

Using Qualitative Analysis to Assess a Model of Support for Online Health Communities for People Living with Chronic Health Conditions

This poster presentation was accepted to be shown at the Connected Health Conference (IIMR) in Boston, MA and showcases qualitative data from Health Union’s community sites and Facebook pages.

Facebook…the destination for health information? Understanding chronic disease patients use of social media and online health information

This abstract was accepted for a roundtable discussion at the APHA Conference 2017 using information from Health Union’s Online Health Information survey.

OTHER

Survey of Migraine Sufferers With Dogs to Evaluate for Canine Migraine-Alerting Behaviors

This manuscript was published in The Journal of Alternative and Complementary Medicine in 2013 and written in partnership with University of Pittsburgh.

Migraine-alerting behaviors in dogs living with migraineurs

This poster was accepted and presented at the EFNS – European Academy of Neurology featuring Health Union survey data, done in partnership with University of Pittsburgh.