PUBLICATIONS
Health Union Announces Acceptance to Present at NCCN Annual Conference 2019
TREATMENT EXPERIENCES
The headache of Migraine management: Prevalence and efficacy of treatment type in a national Migraine population
/in Publications, Treatment Experiences /by NathaliePartnering with University of Colorado, this abstract was published at the Society of Behavioral Medicine Conference 2019 showcasing data from Health Union’s Migraine In America 2015 survey.
Misperceptions regarding palliative and hospice care among Cancer patients — What can we learn from patient-reported treatment decision making
/in Publications, Treatment Experiences /by NathalieThis abstract was published at the NCCN 2019 Annual Meeting, showcasing data from Health Union’s Impact of Cancer survey.
Perceived treatment satisfaction and effectiveness facilitators among patients with chronic health conditions: A self-reported survey
/in Treatment Experiences /by Lina KirbyHealth Union, LLC has been accepted for an oral presentation at the 2018 Annual Meeting & Expo of the American Public Health Association (APHA) in San Diego. The presentation, based on the abstract titled “Perceived treatment satisfaction and effectiveness facilitators among patients with chronic health conditions: A self-reported survey,” will occur at 3 p.m. on Nov. 12.
Focused HCP discussion and proactive education on relapse identification and management improves patient reporting and timely treatment of MS relapse
/in Publications, Treatment Experiences /by NathaliePartnering with Mallinckrodt Pharmaceuticals, this abstract was published at the CMSC Annual Meeting, showcasing data from Health Union’s Multiple Sclerosis In America 2017 survey.
Does complementary and alternative medicine (CAM) use reduce negative life impact of headaches for chronic migraineurs? A national survey
/in Publications, Treatment Experiences /by Lina KirbyPartnering with Unversity of Massachusetts/UMass Memorial Medical Center, this manuscript was published in January 2016 showcasing data from Health Union’s Migraine In America 2014 survey.
Prescription opioid medication use among people with migraine: national survey results
/in Publications, Treatment Experiences /by Lina KirbyPartnering with University of Massachusetts/UMass Memorial Medical Center and University of Colorado – Denver, this poster was published in 2016 showcasing data from Health Union’s Migraine In America 2015 survey.
Biologic DMARD use among U.S. patients in an online rheumatoid arthritis community
/in Publications, Treatment Experiences /by Lina KirbyPartnering with Eli Lilly, this abstract was published in September 2016 showcasing data from Health Union’s Rheumatoid Arthritis In America 2015 survey.
Negative impact of migraine and complementary and alternative medicine (CAM) treatments
/in Publications, Treatment Experiences /by Lina KirbyThis poster was published at the World Federation of Mental Health 2015 in Singapore, showcasing data from Health Union’s Migraine In America 2014 survey.
Exploring the negative impact of migraine and the impact of alternative medicine treatments
/in Publications, Treatment Experiences /by Lina KirbyPartnering with University of Massachusetts/UMass Memorial Medical Center, this abstract was published in 2015 showcasing data from Health Union’s Migraine in America 2012 survey.
PATIENT JOURNEY
Childhood onset Migraine and adult outcomes: A retrospective survey
/in Patient Journey, Publications /by NathaliePartnering with University of Chung-Ang and University of Colorado, this abstract showcases data from Health Union’s Migraine In America 2015 survey.
Impact on interpersonal relationships among caregivers and patients with multiple sclerosis
/in Patient Journey, Publications /by NathaliePartnering with University of Pittsburgh, this manuscript was published in January 2019 showcasing data from Health Union’s Multiple Sclerosis Relationship 2012 and 2013 survey.
Correlates of healthcare-seeking behavior during relapse among patients with multiple sclerosis
/in Patient Journey, Publications /by Lina KirbyPartnering with Mallinckrodt Pharmaceuticals, this abstract was published in 2018 showcasing data from Health Union’s Multiple Sclerosis In America 2017 survey.
Differentiating characteristics of patients seeking a second opinion: A survey on non-small cell lung cancer patients
/in Patient Journey, Publications /by Lina KirbyThis poster presentation was accepted at the IASLC 19th World Conference on Lung Cancer (WCLC) in Toronto in September 2018, showcasing data from Health Union’s Lung Cancer in America 2017 survey.
The Chronic Migraine experience
/in Patient Journey, Publications /by Lina KirbyPartnering with University of Massachusetts/UMass Memorial Medical Center, this poster was published in 2016 showcasing data from Health Union’s Migraine In America 2014 survey.
Spirituality and Chronic Migraines
/in Patient Journey, Publications /by Lina KirbyPartnering with Chung-Ang University and University of Colorado, this abstract was published in 2015 showcasing data from Health Union’s Migraine In America 2015 survey.
Fibromyalgia family and relationship impact exploratory survey
/in Patient Journey, Publications /by Lina KirbyThis manuscript was published in Musculoskeletal Care in 2012 in partnership with University of Pittsburgh, highlighting data from Health Union’s Fibromyalgia Relationship Impact Survey.
HEALTHCARE PROFESSIONAL EXPERIENCES
Relapse prevalence, symptoms, and health care engagement: Patient insights from the Multiple Sclerosis In America 2017 survey
/in Healthcare Professional Experiences, Publications /by Lina KirbyPartnering with Mallinckrodt Pharmaceuticals, this abstract was published in November 2017 showcasing data from Health Union’s Multiple Sclerosis In America 2017 survey.
Patient-reported experiences regarding healthcare-related cost discussions with their healthcare professionals
/in Healthcare Professional Experiences, Publications /by Lina KirbyThis abstract was published in October 2017 showcasing data from Health Union’s Cost of Care survey.
QUALITY OF LIFE
To journal or not to journal: Migraine journal use among 2015 Migraine in America cohort
/in Publications, Quality of Life /by NathaliePartnering with University of Colorado, this abstract was published at the Society of Behavioral Medicine Conference 2019 showcasing data from Health Union’s Migraine In America 2015 survey.
Fibromyalgia comorbidity in a community sample of adults with migraine
/in Publications, Quality of Life /by Lina KirbyPartnering with University of Pittsburgh, this manuscript was published in Clinical Rheumatology in 2013, showcasing data from Health Union’s Insights from online Migraine communities.
More is not always better: an epidemiological assessment of migraine frequency and the impact on relationships
/in Publications, Quality of Life /by Lina KirbyPartnering with University of Colorado – Denver, this manuscript was published in the Journal of Pain Management and Medicine in July 2017 showcasing data Health Union’s Migraine Relationship survey.
Impact of employment status on health-related quality of life for people living with autoimmune conditions
/in Publications, Quality of Life /by Lina KirbyThis abstract was published in 2016 showcasing data from Health Union’s PsA, RA, IBD, Plaque Psoriasis & MS In America 2016 surveys.
The chronic migraineur and health services: National survey results
/in Publications, Quality of Life /by Lina KirbyPartnering with University of Massachusetts/UMass Memorial Medical Center, this manuscript was published in November 2015 showcasing data from Health Union’s Migraine In America 2014 survey.
The relationship between smoking and migraine frequency: the moderating effect of locus of control
/in Publications, Quality of Life /by Lina KirbyPartnering with University of Colorado – Denver, this poster was published in 2015 showcasing data from Health Union’s Migraine In America 2015 survey.
Migraine: treatments, comorbidities, and quality of life, in the USA
/in Publications, Quality of Life /by Lina KirbyPartnering with University of Massachusetts/UMass Memorial Medical Center, this manuscript was published in May 2015 in the Journal of Pain Research showcasing data from Health Union’s Migraine In America 2012 survey.
ONLINE HEALTH COMMUNITIES
Attracting users to online health communities: Results of the LungCancer.net Facebook advertisement campaign
/in Online Health Communities, Publications /by NathaliePartnering with University of North Carolina at Chapel Hill, this abstract was published in the A in October 2018, showcasing data from Health Union’s Facebook Insights.
Online Health Communities: A New Frontier in Health Research
/in Online Health Communities, Publications /by Lina KirbyAccepted and presented at the DIA 2017 Conference.
Facebook advertising to increase online community engagement: Results of the LungCancer.net advertisement campaign
/in Online Health Communities, Publications /by NathaliePartnering with University of Chung-Ang and University of Colorado, this abstract showcases data from Health Union’s Migraine In America 2015 survey.
Using qualitative analysis to assess a model of support for online health communities for people living with chronic health conditions
/in Online Health Communities, Publications /by Lina KirbyPartnering with University of University of Michigan – School of Public Health, this poster presentation was accepted and published at the Connected Health Conference (IIMR) in Boston, MA in 2018, showcasing data from Health Union’s community sites and Facebook pages.
Facebook…the destination for health information? Understanding chronic disease patients use of social media and online health information
/in Online Health Communities, Publications /by Lina KirbyThis abstract was published in 2017 showcasing data from Health Union’s Online Health Information survey.
Migraine frequency but not self-efficacy drives utilization and impact from online resources
/in Online Health Communities, Publications /by Lina KirbyPublished in Headache: The Journal of Head and Face Pain in 2012, this Letter to the Editor was written in partnership with University of Pittsburgh.
OTHER
Survey of Migraine sufferers with dogs to evaluate for Canine Migraine-alerting behaviors
/in Other, Publications /by Lina KirbyThis manuscript was published in The Journal of Alternative and Complementary Medicine in 2013 and written in partnership with University of Pittsburgh.
Migraine-alerting behaviors in dogs living with migraineurs
/in Other, Publications /by Lina KirbyPartnering with University of Pittsburgh, this poster was published at the EFNS – European Academy of Neurology in 2012 showcasing Health Union’s Migraine and Dogs survey data.
