Let’s Talk About IBS: What people with IBS want others to know

IBS can cause gastrointestinal symptoms that have a substantial negative impact on one’s life, which is often amplified by the condition’s impact on a patient’s emotional well-being. The “IBS In America 2018” survey conducted by Health Union gathered insights from over 1,500 people currently suffering from IBS to better understand the condition’s impact on their lives. The survey found that 45% of people with IBS are apt to experience anxiety or panic disorders, with stress also being a trigger for many patients.

Connecting Across Communities: Health Union Conference for Patient Advocacy Kicks Off in Philadelphia

On March 26, 2018 Health Union opened the doors of its new event center in Philadelphia for the second annual HU Connexion, a conference for patient advocacy, to gather and thank the extraordinary network of patient advocates who share their experiences and journeys with thousands of people every day as moderators and contributors for its online communities.

SCOPE 2018: Online Health Communities Fill Gap Between What Patients Want, Researchers Need

Online communities fill a void for people with chronic health conditions, offering information, emotional support and connection to others with common experiences. By fostering relationships with members of these online health communities – through relevant content and engaging social conversations that touch on and validate the personal experiences of living with certain chronic conditions – Health Union has the rare opportunity to more accurately understand the concerns of people with these conditions.

2018 Philadelphia Top Workplaces

Health Union Honored as 2018 Philadelphia Top Workplace

Today, Health Union, LLC was named a 2018 Philadelphia Top Workplace by Philadelphia Media Network (parent company of the Philadelphia Inquirer, Philadelphia Daily News, and The Top Workplaces in Delaware Valley, announced today on, recognizes companies that excel in creating a healthy workplace culture that supports employee engagement. Top Workplaces are not only better places to work, but have a competitive advantage compared to peer organizations

Bladder Cancer In America 2017

Health Union Launches As Its Newest Online Community

“Bladder Cancer In America” survey shows need for more support, resources – Many diagnosed with bladder cancer believe their healthcare providers can do a better job connecting them with support networks and other resources, according to findings in Health Union’s latest survey which accompanied the launch of its newest online community,

Psoriatic Arthritis In America 2017 survey

Psoriatic Arthritis Impact Not Always Visible

Explaining the “invisible” aspects of psoriatic arthritis often presents a challenge, according to “Psoriatic Arthritis In America,” a newly released Health Union survey of patients diagnosed with the condition. Survey respondents said they often experience difficulty in making others understand that despite a lack of outwardly visible symptoms, they have a chronic condition that can cause fatigue and affects their entire body.

Hepatitis C In America patient survey 2017

Hepatitis C Patients Delay Treatment Due to Cost Concerns

“Hepatitis C In America,” a new Health Union national survey of 609 individuals diagnosed with chronic hepatitis C infection, shows that more than one-third of uncured respondents were not currently under the care of a healthcare provider (HCP), typically due to financial concerns. The survey also found a desire to know more about the condition, with most respondents wishing they had more information at the time of diagnosis, particularly about Hepatitis C’s impact on their bodies and long-term complications of the virus.

Atopic Dermatitis In America 2017

Health Union Launches New Online Community:

In addition to the physical symptoms of atopic dermatitis such as intense itching and dry, scaly skin, people suffering from the condition often wrestle with feelings of embarrassment and frustration, according to “Atopic Dermatitis In America,” a new Health Union survey. The online survey was conducted May 3-July 11, 2017 and accompanied the launch of Health Union’s newest community,

Rheumatoid Arthritis In America patient survey 2017

Survey Shows Rheumatoid Arthritis Patients Struggle to Explain Unseen Symptoms

More than either in 10 (85 percent) of patients diagnosed with rheumatoid arthritis (RA) said they found it difficult to explain the “invisible” aspects of the condition to others, according to Health Union’s latest “Rheumatoid Arthritis In America” survey. “Pain and fatigue are not always obvious,” said patient advocate, Kate Elton. “That’s one of the biggest challenges people have around explaining their disease.”

Migraine In America patient survey 2017

Migraine Takes a Major Toll on Work, School, and Social Life

A new Health Union survey of people currently diagnosed with migraine finds nearly three-quarters (73 percent) of respondents report their education and/or career had been affected by the condition. Among the 4,500 respondents to the Migraine In America online survey, migraine negatively affected all aspects of life, including their ability to work, attend school, and participate in social activities.

Psoriasis In America patient survey 2017

Survey Reveals Psoriasis Patients’ Journeys Take Different Paths

A new Health Union national survey of more than 1,000 individuals diagnosed with psoriasis reveals that each person’s symptoms and treatment journey is different and some patients’ paths are more circuitous than others. Psoriasis In America 2017 was conducted online between April 4, 2017 – May 26, 2017 and released through Health Union’s online community,

Skin Cancer In America patient survey findings

Skin Cancer Patients’ Road to Diagnosis Can be Rocky

A new Health Union national survey, Skin Cancer In America 2017, reveals that patients often struggle with the shock of diagnosis and fear of recurrence once treated. The survey of more than 900 individuals diagnosed with skin cancer was released in conjunction with the launch of the newest Health Union online community, Skin

COPD In America 2017

COPD Patients Struggle with More Than Breathing Difficulties

A new Health Union national survey, COPD In America 2017, of more than 2,000 individuals diagnosed with chronic obstructive pulmonary disease (COPD) reveals that patients struggle with a range of issues that go beyond difficulties with breathing. The survey was released through Health Union’s online community,, and finds patients struggle with the emotional impact of COPD and often find their healthcare providers are not very helpful in addressing these issues.

Parkinson's Disease In America 2017 patient survey

Survey Finds Parkinson’s Disease Impact on Quality of Life Is Significant

Patients and Caregivers Can Benefit from New Online Community – An accurate diagnosis for Parkinson’s disease is often complicated and delayed by an array of symptoms resembling other conditions, according to a new survey from Health Union. The survey involved more than 1,100 individuals currently living with Parkinson’s disease and was released through its newest online community, The survey finds patients are frustrated in coping with and treating a complex condition that encompasses many diverse symptoms.

Asthma In America 2017 patient survey

Asthma Symptoms Hinders Patient Control of Disease, New Survey Reports

Asthma patients suffer from a large number of symptoms that impact many aspects of their quality of life, according to Asthma In America 2017, a newly released national survey of more than 1,000 individuals diagnosed with the condition. The survey finds patients deal with a chaotic array of triggers that often make the disease extremely difficult to manage and control.

IBD In America survey illustrated invisible burden of disease

IBD Patients Experience Invisible & Life-altering Burdens

New survey finds IBD patients often suffer from misdiagnosis and pain: IBD In America 2017, a national survey by Health Union of more than 4,000 individuals diagnosed with Crohn’s disease or ulcerative colitis (UC), reveals many people with these conditions struggle with fatigue, pain, and other often invisible symptoms that affect many aspects of daily life. The survey, released through Health Union’s online community,, also finds that patients are often initially misdiagnosed. Many report struggling to find an effective treatment, but are hopeful for future treatment options.

Living with Multiple Sclerosis is more complex than you think

New Survey Finds Multiple Sclerosis Patients Struggle with Misdiagnosis and Invisible Symptoms

MS in America 2017, a national survey of more than 5,300 individuals diagnosed with multiple sclerosis (MS), reveals many people initially received an improper diagnosis and have trouble finding an effective treatment. The survey, conducted between January 25 and March 1, 2017, also finds patients struggle with pain and symptoms that impact many aspects of daily life. MS in America 2017 is the fifth annual Health Union survey about the condition.

IBS In America 2017

IBS In America Survey Finds Patients Struggle with Diagnosis

IBS In America 2017, a national survey by Health Union of more than 1,300 individuals who have experienced Irritable Bowel Syndrome (IBS) symptoms, reveals many people initially chose to do nothing about symptoms and often received an improper diagnosis. The survey, released through Health Union’s online community,, also finds patients are unsatisfied with their health care professionals (HCPs), struggle with negative feelings, and a majority are also diagnosed with other health conditions.