Survey Finds People with Cystic Fibrosis Using a CFTR Modulator Have Positive View of Treatment Plans, HCP Relationships, Future

A new survey from Health Union, Cystic Fibrosis In America 2019, finds that people with the condition who currently use a cystic fibrosis transmembrane conductance regulator (CFTR) modulator tend to have a more positive view about their futures, treatment plans and healthcare professional relationships than those who have never used one.


A woman is anxious about her IBS diagnosis.

Diagnosis of IBS Is on the Rise, but Where’s the Relief?

For many chronic conditions, obtaining a formal IBS diagnosis can lead to validation and relief, allowing the patient to then find an effective treatment. With IBS, however, this does not appear to be the case. Since 2017, annual IBS In America statistics have shown an increased rate of formal diagnosis from a healthcare professional year over year, with 90% of respondents reporting a formal diagnosis in 2019 up from 87% in 2018.


Health Union Announces Multiple Presentations at APHA 2019 Annual Meeting and Expo

Health Union will share research findings based on data and experience from three of the company’s oncology-specific online health communities in presentations at the American Public Health Association (APHA) 2019 Annual Meeting and Expo in Philadelphia.


The Philadelphia Inquirer – With Alzheimer’s, the Phone Can Be Both a Lifeline And a Danger ( Advocate Jim Klunder)

RT Magazine – Survey: Cystic Fibrosis Patients Receiving CFTR Modulators Had More Positive Health Outlooks (Cystic Fibrosis In America 2019 Findings)

PharmaVOICE – Patient Influencers Are Transforming Pharma Marketing Strategies (Olivier Chateau, co-founder & CEO)

PharmaVOICE – A Crisis of Trust: Pharma’s Battle to Win Back Public Confidence (Lauren Lawhon, COO)

PharmaVOICE – The Changing Role of the Traditional Pharma Brand (Olivier Chateau, co-founder & CEO)

PharmaVOICE – The Future of Decentralized Trials (Lauren Lawhon, COO)

PharmaVOICE – Bringing Humanity Back to Healthcare (Olivier Chateau, co-founder & CEO)

PM360 – Four Key Questions About Data Analytics in 2019 (David Shronk, SVP, Media)

Philadelphia Business Journal – 7 Philadelphia-Area Companies Make Deloitte Fastest-Growing List Philly – These 4 Philly Companies Were Named to Deloitte’s Technology Fast 500 List

Philadelphia Magazine – For His 30th Birthday, This Leukemia Survivor Went on a Road Trip to Share His Story in 30 Cities ( Advocate Vincent Goodwin)

Outsourcing Pharma – BBK Report: Design, Content Are Key to Health App Usage (Health Union Survey Partnership)

PharmaVOICE – Digital Pharma East with David Shronk (Video)

PM360 – Healthcare Watch October 2019 – Women with Endometriosis: Hormone Shopping (Endometriosis In America 2019 Findings)

Multiple Sclerosis News Today – RRMS Patients Not Using DMTs More Likely to Have Been Misdiagnosed, Cite Poorer Relationships with Doctors, Survey Says (MS In America 2019 Findings)

American Journal of Managed Care – Digital Inhaler Interest Growing Among Patients With Severe Forms of COPD or Asthma (COPD & Asthma In America 2019 Findings)

MM&M – The Intersection of Data and Emotion

PharmaVOICE – Create Connections. Make a Difference. (Amrita Bhowmick, Chief Community Officer)

Retinal Physician – Subspeciality News: Retina Specialists Positively Impact AMD Patients (Macular Degeneration In America 2019 Findings)

Philadelphia Business Journal – The Soaring 76 – Greater Philadelphia’s 2019 Fastest-Growing Companies