IN THE NEWS
“Parkinson’s Disease In America 2018,” an annual survey conducted by Health Union, recently revealed the experiences and perspectives of more than 1,600 patients and care partners who are impacted by PD. The survey shows patients turned to PD-specific websites nearly as much as their doctor to learn about or manage their condition.
IBS can cause gastrointestinal symptoms that have a substantial negative impact on one’s life, which is often amplified by the condition’s impact on a patient’s emotional well-being. The “IBS In America 2018” survey conducted by Health Union gathered insights from over 1,500 people currently suffering from IBS to better understand the condition’s impact on their lives. The survey found that 45% of people with IBS are apt to experience anxiety or panic disorders, with stress also being a trigger for many patients.
The emotional impact of prostate cancer – from diagnosis to side effects from treatments – often outweighs the physical impact, according to “Prostate Cancer In America,” a national survey by Health Union, LLC of men with prostate cancer and their caregivers.
On March 26, 2018 Health Union opened the doors of its new event center in Philadelphia for the second annual HU Connexion, a conference for patient advocacy, to gather and thank the extraordinary network of patient advocates who share their experiences and journeys with thousands of people every day as moderators and contributors for its online communities.
Health Union was named the No. 1 business in the Small Employer category in the 2018 Philadelphia Top Workplaces program. Additionally, Health Union CEO and co-founder Olivier Chateau received a recognition award that honors employees’ confidence in his leadership.
Pharmaceutical industry veteran Adam Kesselman has joined Health Union, LLC in the newly created role of senior vice president of corporate development. With more than 20 years of industry experience, Kesselman will continue to build on the company’s growth and strengthen relationships with various partners.
Online communities fill a void for people with chronic health conditions, offering information, emotional support and connection to others with common experiences. By fostering relationships with members of these online health communities – through relevant content and engaging social conversations that touch on and validate the personal experiences of living with certain chronic conditions – Health Union has the rare opportunity to more accurately understand the concerns of people with these conditions.
Today, Health Union, LLC was named a 2018 Philadelphia Top Workplace by Philadelphia Media Network (parent company of the Philadelphia Inquirer, Philadelphia Daily News, and Philly.com). The Top Workplaces in Delaware Valley, announced today on Philly.com, recognizes companies that excel in creating a healthy workplace culture that supports employee engagement. Top Workplaces are not only better places to work, but have a competitive advantage compared to peer organizations
“Bladder Cancer In America” survey shows need for more support, resources – Many diagnosed with bladder cancer believe their healthcare providers can do a better job connecting them with support networks and other resources, according to findings in Health Union’s latest survey which accompanied the launch of its newest online community, BladderCancer.net.
While people with type 2 diabetes understand what steps are needed to manage their condition, many are challenged by the demands of doing so, according to a new Health Union survey, “Type 2 Diabetes In America.” Respondents used words like “frustrating,” “challenging,” “annoying,” “difficult,” and “inconvenient” to describe the condition …
Explaining the “invisible” aspects of psoriatic arthritis often presents a challenge, according to “Psoriatic Arthritis In America,” a newly released Health Union survey of patients diagnosed with the condition. Survey respondents said they often experience difficulty in making others understand that despite a lack of outwardly visible symptoms, they have a chronic condition that can cause fatigue and affects their entire body.
“Hepatitis C In America,” a new Health Union national survey of 609 individuals diagnosed with chronic hepatitis C infection, shows that more than one-third of uncured respondents were not currently under the care of a healthcare provider (HCP), typically due to financial concerns. The survey also found a desire to know more about the condition, with most respondents wishing they had more information at the time of diagnosis, particularly about Hepatitis C’s impact on their bodies and long-term complications of the virus.
In addition to the physical symptoms of atopic dermatitis such as intense itching and dry, scaly skin, people suffering from the condition often wrestle with feelings of embarrassment and frustration, according to “Atopic Dermatitis In America,” a new Health Union survey. The online survey was conducted May 3-July 11, 2017 and accompanied the launch of Health Union’s newest community, AtopicDermatitis.net.
More than either in 10 (85 percent) of patients diagnosed with rheumatoid arthritis (RA) said they found it difficult to explain the “invisible” aspects of the condition to others, according to Health Union’s latest “Rheumatoid Arthritis In America” survey. “Pain and fatigue are not always obvious,” said RheumatoidArthritis.net patient advocate, Kate Elton. “That’s one of the biggest challenges people have around explaining their disease.”
A new Health Union survey of people currently diagnosed with migraine finds nearly three-quarters (73 percent) of respondents report their education and/or career had been affected by the condition. Among the 4,500 respondents to the Migraine In America online survey, migraine negatively affected all aspects of life, including their ability to work, attend school, and participate in social activities.
A new Health Union national survey of more than 1,000 individuals diagnosed with psoriasis reveals that each person’s symptoms and treatment journey is different and some patients’ paths are more circuitous than others. Psoriasis In America 2017 was conducted online between April 4, 2017 – May 26, 2017 and released through Health Union’s online community, PlaquePsoriasis.com.
On July 11, Health Union was named a finalist in MM&M’s 2017 Awards – Healthcare Consumer Media Brand – for RheumatoidArthritis.net. MM&M’s annual awards recognize and champion both creativity and effectiveness in healthcare marketing and communications.
A new Health Union national survey, Skin Cancer In America 2017, reveals that patients often struggle with the shock of diagnosis and fear of recurrence once treated. The survey of more than 900 individuals diagnosed with skin cancer was released in conjunction with the launch of the newest Health Union online community, Skin Cancer.net.
A new Health Union national survey, COPD In America 2017, of more than 2,000 individuals diagnosed with chronic obstructive pulmonary disease (COPD) reveals that patients struggle with a range of issues that go beyond difficulties with breathing. The survey was released through Health Union’s online community, COPD.net, and finds patients struggle with the emotional impact of COPD and often find their healthcare providers are not very helpful in addressing these issues.
Patients and Caregivers Can Benefit from New Online Community – An accurate diagnosis for Parkinson’s disease is often complicated and delayed by an array of symptoms resembling other conditions, according to a new survey from Health Union. The survey involved more than 1,100 individuals currently living with Parkinson’s disease and was released through its newest online community, ParkinsonsDisease.net. The survey finds patients are frustrated in coping with and treating a complex condition that encompasses many diverse symptoms.
Asthma patients suffer from a large number of symptoms that impact many aspects of their quality of life, according to Asthma In America 2017, a newly released national survey of more than 1,000 individuals diagnosed with the condition. The survey finds patients deal with a chaotic array of triggers that often make the disease extremely difficult to manage and control.
New survey finds IBD patients often suffer from misdiagnosis and pain: IBD In America 2017, a national survey by Health Union of more than 4,000 individuals diagnosed with Crohn’s disease or ulcerative colitis (UC), reveals many people with these conditions struggle with fatigue, pain, and other often invisible symptoms that affect many aspects of daily life. The survey, released through Health Union’s online community, CrohnsDisease.com, also finds that patients are often initially misdiagnosed. Many report struggling to find an effective treatment, but are hopeful for future treatment options.
MS in America 2017, a national survey of more than 5,300 individuals diagnosed with multiple sclerosis (MS), reveals many people initially received an improper diagnosis and have trouble finding an effective treatment. The survey, conducted between January 25 and March 1, 2017, also finds patients struggle with pain and symptoms that impact many aspects of daily life. MS in America 2017 is the fifth annual Health Union survey about the condition.
IBS In America 2017, a national survey by Health Union of more than 1,300 individuals who have experienced Irritable Bowel Syndrome (IBS) symptoms, reveals many people initially chose to do nothing about symptoms and often received an improper diagnosis. The survey, released through Health Union’s online community, IrritableBowelSyndrome.net, also finds patients are unsatisfied with their health care professionals (HCPs), struggle with negative feelings, and a majority are also diagnosed with other health conditions.
Lung Cancer In America 2017, a newly released national survey by Health Union conducted with more than 800 individuals diagnosed with lung cancer, reveals high levels of stress and anxiety, even among those declared as having no evidence of disease (NED). The survey finds patients are satisfied with their health care professionals (HCPs), and see them as thorough and understanding.
Taking on the newly created role of Senior Vice President, Insights, Anna McClafferty has joined Health Union’s leadership team, where she will be responsible for driving the growth of the company’s Insights business.
Rheumatoid Arthritis In America 2016, a national survey by Health Union of more than 3,100 individuals who identified as having rheumatoid arthritis (RA), reveals that initial symptoms are often invisible to others, with respondents experiencing more than six on average. A summary infographic is also available. Among people with RA who took the survey, receiving a diagnosis often proved difficult with the average time between initial symptoms and diagnosis spanning four years.
T2D Lifestyle, a national survey by Health Union of more than 400 individuals living with type 2 diabetes (T2D), reveals that patients not only struggle with commonly understood complications, but also numerous lesser known ones that people do not associate with diabetes. Managing diabetes on a daily basis can also result in emotional stress.
Psoriatic Arthritis In America 2016, is a new national survey by Health Union of over 500 individuals suffering from psoriatic arthritis (PsA). The results reveal that the diagnosis process is often frustrating and lengthy, and that most patients experience multiple symptoms before leading to a diagnosis. In addition, respondents reported difficulty explaining often invisible symptoms that progress and become more debilitating over time.
Last Thursday, Medical Marketing & Media (MM&M) celebrated its annual Awards Gala, which recognizes and champions both creativity and effectiveness in healthcare marketing and communications. Health Union was awarded Silver in Best Healthcare Consumer Media Brand for its patient-centric platform, MultipleSclerosis.net. Judges were impressed by new features, such as customized content based on patient personas, which helped drive huge increases in monthly site visits, registered members, and media revenues, as well as monthly Facebook reach (1.2 million) and engagement.