IN THE NEWS
In addition to the physical symptoms of atopic dermatitis such as intense itching and dry, scaly skin, people suffering from the condition often wrestle with feelings of embarrassment and frustration, according to “Atopic Dermatitis In America,” a new Health Union survey. The online survey was conducted May 3-July 11, 2017 and accompanied the launch of Health Union’s newest community, AtopicDermatitis.net.
More than either in 10 (85 percent) of patients diagnosed with rheumatoid arthritis (RA) said they found it difficult to explain the “invisible” aspects of the condition to others, according to Health Union’s latest “Rheumatoid Arthritis In America” survey. “Pain and fatigue are not always obvious,” said RheumatoidArthritis.net patient advocate, Kate Elton. “That’s one of the biggest challenges people have around explaining their disease.”
A new Health Union survey of people currently diagnosed with migraine finds nearly three-quarters (73 percent) of respondents report their education and/or career had been affected by the condition. Among the 4,500 respondents to the Migraine In America online survey, migraine negatively affected all aspects of life, including their ability to work, attend school, and participate in social activities.
A new Health Union national survey of more than 1,000 individuals diagnosed with psoriasis reveals that each person’s symptoms and treatment journey is different and some patients’ paths are more circuitous than others. Psoriasis In America 2017 was conducted online between April 4, 2017 – May 26, 2017 and released through Health Union’s online community, PlaquePsoriasis.com.
On July 11, Health Union was named a finalist in MM&M’s 2017 Awards – Healthcare Consumer Media Brand – for RheumatoidArthritis.net. MM&M’s annual awards recognize and champion both creativity and effectiveness in healthcare marketing and communications.
A new Health Union national survey, Skin Cancer In America 2017, reveals that patients often struggle with the shock of diagnosis and fear of recurrence once treated. The survey of more than 900 individuals diagnosed with skin cancer was released in conjunction with the launch of the newest Health Union online community, Skin Cancer.net.
A new Health Union national survey, COPD In America 2017, of more than 2,000 individuals diagnosed with chronic obstructive pulmonary disease (COPD) reveals that patients struggle with a range of issues that go beyond difficulties with breathing. The survey was released through Health Union’s online community, COPD.net, and finds patients struggle with the emotional impact of COPD and often find their healthcare providers are not very helpful in addressing these issues.
Patients and Caregivers Can Benefit from New Online Community – An accurate diagnosis for Parkinson’s disease is often complicated and delayed by an array of symptoms resembling other conditions, according to a new survey from Health Union. The survey involved more than 1,100 individuals currently living with Parkinson’s disease and was released through its newest online community, ParkinsonsDisease.net. The survey finds patients are frustrated in coping with and treating a complex condition that encompasses many diverse symptoms.
Asthma patients suffer from a large number of symptoms that impact many aspects of their quality of life, according to Asthma In America 2017, a newly released national survey of more than 1,000 individuals diagnosed with the condition. The survey finds patients deal with a chaotic array of triggers that often make the disease extremely difficult to manage and control.
New survey finds IBD patients often suffer from misdiagnosis and pain: IBD In America 2017, a national survey by Health Union of more than 4,000 individuals diagnosed with Crohn’s disease or ulcerative colitis (UC), reveals many people with these conditions struggle with fatigue, pain, and other often invisible symptoms that affect many aspects of daily life. The survey, released through Health Union’s online community, CrohnsDisease.com, also finds that patients are often initially misdiagnosed. Many report struggling to find an effective treatment, but are hopeful for future treatment options.
MS in America 2017, a national survey of more than 5,300 individuals diagnosed with multiple sclerosis (MS), reveals many people initially received an improper diagnosis and have trouble finding an effective treatment. The survey, conducted between January 25 and March 1, 2017, also finds patients struggle with pain and symptoms that impact many aspects of daily life. MS in America 2017 is the fifth annual Health Union survey about the condition.
IBS In America 2017, a national survey by Health Union of more than 1,300 individuals who have experienced Irritable Bowel Syndrome (IBS) symptoms, reveals many people initially chose to do nothing about symptoms and often received an improper diagnosis. The survey, released through Health Union’s online community, IrritableBowelSyndrome.net, also finds patients are unsatisfied with their health care professionals (HCPs), struggle with negative feelings, and a majority are also diagnosed with other health conditions.
Lung Cancer In America 2017, a newly released national survey by Health Union conducted with more than 800 individuals diagnosed with lung cancer, reveals high levels of stress and anxiety, even among those declared as having no evidence of disease (NED). The survey finds patients are satisfied with their health care professionals (HCPs), and see them as thorough and understanding.
Taking on the newly created role of Senior Vice President, Insights, Anna McClafferty has joined Health Union’s leadership team, where she will be responsible for driving the growth of the company’s Insights business.
Rheumatoid Arthritis In America 2016, a national survey by Health Union of more than 3,100 individuals who identified as having rheumatoid arthritis (RA), reveals that initial symptoms are often invisible to others, with respondents experiencing more than six on average. A summary infographic is also available. Among people with RA who took the survey, receiving a diagnosis often proved difficult with the average time between initial symptoms and diagnosis spanning four years.
T2D Lifestyle, a national survey by Health Union of more than 400 individuals living with type 2 diabetes (T2D), reveals that patients not only struggle with commonly understood complications, but also numerous lesser known ones that people do not associate with diabetes. Managing diabetes on a daily basis can also result in emotional stress.
Psoriatic Arthritis In America 2016, is a new national survey by Health Union of over 500 individuals suffering from psoriatic arthritis (PsA). The results reveal that the diagnosis process is often frustrating and lengthy, and that most patients experience multiple symptoms before leading to a diagnosis. In addition, respondents reported difficulty explaining often invisible symptoms that progress and become more debilitating over time.
Last Thursday, Medical Marketing & Media (MM&M) celebrated its annual Awards Gala, which recognizes and champions both creativity and effectiveness in healthcare marketing and communications. Health Union was awarded Silver in Best Healthcare Consumer Media Brand for its patient-centric platform, MultipleSclerosis.net. Judges were impressed by new features, such as customized content based on patient personas, which helped drive huge increases in monthly site visits, registered members, and media revenues, as well as monthly Facebook reach (1.2 million) and engagement.
As we transcend into the Health 2.0 ecosystem, where the notion of patients using technologies to take control of their personal wellbeing has become more commonplace, our entire global healthcare system has begun to shift.
Migraine in America 2016, a national survey by Health Union of more than 3,900 individuals experiencing migraines, reveals that patients have numerous treatment options, but are often dissatisfied with results. A summary infographic is also available. Many reported difficulty receiving a diagnosis, particularly when young. In addition, respondents noted feeling isolated and stigmatized due to the condition.
Psoriasis in America 2016, a new national survey by Health Union of nearly 600 individuals with psoriasis, reveals that although patients have numerous treatment options, they have difficulty finding treatment plans that work. In addition, respondents reported a heavy emotional toll, with many feeling isolated and stigmatized due to the condition.
At Health Union, our online health communities: Migraine.com,MultipleSclerosis.net, RheumatoidArthitis.net, Type2Diabetes.com,HepatitisC.net, COPD.net, CrohnsDisease.com, Asthma.net, andIrritableBowelSyndrome.net, have experienced mobile traffic more than close to double that of desktops and laptops. While a lot of reasons could play into this, such as the demographics of our communities or the role of promotions of our content, recent trends regarding mobile and PC devices show we’re not the only ones to experience such an increase in mobile usage. Recent research has shown an explosion of mobile use.
Last week, Health Union CEO and Co-Founder, Olivier Chateau opened up to PharmaExec.com – a leading source for industry news and insights – about how our company is combining digital technologies and high-quality content to build real, trusted relationships with patients. Read an excerpt below or access the full article here.
Today, MM&M announced finalists for its annual awards, which recognize and champion both creativity and effectiveness in healthcare marketing and communications. Health Union is proud to be among the finalists for Best Healthcare Consumer Media Brand for its patient-centric platform, MultipleSclerosis.net. Read more about MM&M Awards 2016 and see other finalists here.
A new national survey by Health Union of more than 1,000 individuals with Irritable Bowel Syndrome (IBS) reveals that the condition is difficult to diagnose and often even more difficult to treat. Respondents often found healthcare providers and the public in general lacking in empathy and understanding of the full impact of the disease. Self-treatment often becomes the norm and controlling symptoms difficult.
A new survey from Health Union of more than 2,200 people with chronic health conditions and their caregivers illustrates how patients use online health information to better understand their health condition, learn about symptoms and treatment, and share experiences with other patients living with the same health condition. The findings are summarized in a recently published white paper, entitled “Social Media for Health: What Patients Really Want.”
In a new national survey of asthma patients, Health Union, and its new online community Asthma.net, reveals that most were satisfied with the care they received; however, the most frequently used form of treatment, at 89%, is the rescue inhaler. The results also show the difficult path many people have prior to being correctly diagnosed with asthma.
We, as humans, are natural story tellers. Even our most basic communications are often expressed in the form of a narrative. “A narrative account involves a sequence of two or more bits of information which are presented in such a way that if the order of the sequence were changed, the meaning of the account would alter”. We apply this, and multiple other indicators, all the time. Temporal changes, tense variation, climaxing topics, learned morals — we incorporate these elements into much of our daily conversation without even realizing it. And we come to digest and remember our experiences based on repeated narration.
In a new national survey of Crohn’s disease patients, Health Union reveals that it was not uncommon for patients to see multiple healthcare professionals (HCPs), have numerous office visits, and endure multiple diagnostic tests before receiving a diagnosis. Results demonstrate an impact on such things as the ability to work or exercise, but also on overall quality of life and social activities. Respondents wished more people understood the disease and its impact.
Anyone who manages a community — online or offline — will identify sensitivities within that community. This includes topics that either generate strong feelings of consensus or prompt division within members. The role of the community manager is to identify these sensitivities, and then manage them in a way that generates positive, productive discussions.