PUBLICATIONS

Attracting users to online health communities: Results of the LungCancer.net Facebook advertisement campaign

Partnering with University of North Carolina at Chapel Hill, this abstract was published in the Health Education and Behavior in October 2018, showcasing data from Health Union’s Facebook Insights.

Fibromyalgia comorbidity in a community sample of adults with migraine

Partnering with University of Pittsburgh, this manuscript was published in Clinical Rheumatology in 2013, showcasing data from Health Union’s Insights from online Migraine communities.

Correlates of healthcare-seeking behavior during relapse among patients with multiple sclerosis

Partnering with Mallinckrodt Pharmaceuticals, this abstract was published in 2018 showcasing data from Health Union’s Multiple Sclerosis In America 2017 survey.

Facebook advertising to increase online community engagement: Results of the LungCancer.net advertisement campaign

The findings of this study demonstrate the feasibility of Facebook advertising as a recruitment tool for online communities and provide a valuable foundation for future research to optimize the reach of the LungCancer.net community and similar online health communities.

Using qualitative analysis to assess a model of support for online health communities for people living with chronic health conditions

This analysis suggests that the structural elements of the online health community model, including active site moderation, support high levels of community engagement and information sharing and mutual support of OHC participants.

Differentiating characteristics of patients seeking a second opinion: A survey on non-small cell lung cancer patients

The findings of this study suggest that regardless of the diagnosing physician, late-stage NSCLC patients and those with no smoking history are more likely to seek a second opinion as compared to early-stage patients and those who have a history of smoking.

Relapse prevalence, symptoms, and health care engagement: Patient insights from the Multiple Sclerosis In America 2017 survey

The results of this study indicate the benefits of timely touchpoints on both the part of the patient and HCP during relapse include the relationship between higher frequency of engagement with lower relapse frequency and more discussion of both relapse-related and MS-related discussion topics.

Facebook…the destination for health information? Understanding chronic disease patients use of social media and online health information

This abstract was published in 2017 showcasing data from Health Union’s Online Health Information survey.

Patient-reported experiences regarding healthcare-related cost discussions with their healthcare professionals

The results of this study suggest that significant differences were noted in patient-initiated cost discussion as compared to HCP-initiated cost discussions.