PUBLICATIONS

Facebook advertising to increase online community engagement: Results of the LungCancer.net advertisement campaign

The findings of this study demonstrate the feasibility of Facebook advertising as a recruitment tool for online communities and provide a valuable foundation for future research to optimize the reach of the LungCancer.net community and similar online health communities.

Using qualitative analysis to assess a model of support for online health communities for people living with chronic health conditions

This analysis suggests that the structural elements of the online health community model, including active site moderation, support high levels of community engagement and information sharing and mutual support of OHC participants.

Differentiating characteristics of patients seeking a second opinion: A survey on non-small cell lung cancer patients

The findings of this study suggest that regardless of the diagnosing physician, late-stage NSCLC patients and those with no smoking history are more likely to seek a second opinion as compared to early-stage patients and those who have a history of smoking.

Relapse prevalence, symptoms, and health care engagement: Patient insights from the Multiple Sclerosis In America 2017 survey

The results of this study indicate the benefits of timely touchpoints on both the part of the patient and HCP during relapse include the relationship between higher frequency of engagement with lower relapse frequency and more discussion of both relapse-related and MS-related discussion topics.

Facebook…the destination for health information? Understanding chronic disease patients use of social media and online health information

This abstract was published in 2017 showcasing data from Health Union’s Online Health Information survey.

Patient-reported experiences regarding healthcare-related cost discussions with their healthcare professionals

The results of this study suggest that significant differences were noted in patient-initiated cost discussion as compared to HCP-initiated cost discussions.

More is not always better: an epidemiological assessment of migraine frequency and the impact on relationships

Results of this study suggest that as migraine frequency increased, negative impact on relationships also increased.

Focused HCP discussion and proactive education on relapse identification and management improves patient reporting and timely treatment of MS relapse

Partnering with Mallinckrodt Pharmaceuticals, this abstract was published at the CMSC Annual Meeting, showcasing data from Health Union’s Multiple Sclerosis In America 2017 survey.

Does complementary and alternative medicine (CAM) use reduce negative life impact of headaches for chronic migraineurs? A national survey

The results of the study show that chronic migraineurs often pursue multiple CAM treatments in spite of low levels of satisfaction with those treatments, while patients who experience relief from traditional treatments are less likely to seek the out additional CAM treatments.

Impact of employment status on health-related quality of life for people living with autoimmune conditions

This abstract was published in 2016 showcasing data from Health Union’s PsA, RA, IBD, Plaque Psoriasis & MS In America 2016 surveys.