Press Releases

Peruse Health Union’s latest news announcements on survey findings, awards, leadership, and more. News media interested in learning more about how Health Union can help them tell the health stories they want to tell can visit our Press Kit and Resource Center for News Media.

Survey: Caregivers Need Emotional Support Resources for Themselves

November 29, 2022

Survey respondents who are current caregivers identified emotional support for themselves (59%) as the top information or resource they need more of.

Health Union Launches RareDisease.Net

November 17, 2022

The aim is for anybody living with one of thousands of rare conditions to connect with others in the shared experience of living with a rare condition.

Health Union to Present Poster on IBS at ACG’s Annual Meeting

October 24, 2022

The research reveals that 40% of survey respondents considered their condition severe and 55% considered their IBS moderate.

Survey Reveals Most People with SMA Using New Gene Therapies

October 19, 2022

Three-fourths of survey respondents said they currently use an “SMN-enhancing” treatment, while another 19% said they previously used one.

New National Study Finds Crohn’s Disease Diagnosis Difficult to Obtain and Life Altering

March 7, 2016

In a new national survey of Crohn’s disease patients, Health Union reveals that it was not uncommon for patients to see multiple healthcare professionals (HCPs), have numerous office visits, and endure multiple diagnostic tests before receiving a diagnosis. Results demonstrate an impact on such things as the ability to work or exercise, but also on overall quality of life and social activities. Respondents wished more people understood the disease and its impact.

Migraine In America Findings Published in Journal of Pain Research

August 19, 2015

Health Union recently had the unique opportunity to collaborate with Amy Wachholtz, PhD and Christopher Malone, from the University of Massachusetts Medical School, to publish findings from the 2012 Migraine In America study. Their interest in understanding the psychological and social impact of migraine was particularly exciting to me, as we at Health Union know first-hand how severely migraine can affect the lives of our community members. Increasing overall awareness regarding this impact is critical for ensuring that individuals with migraine receive the best possible care.

COPD In America 2015 reveals lack of knowledge among patients with COPD

New National Study Finds COPD Knowledge Severely Lacking, Impacts Quality of Life and Care

July 28, 2015

In a new national survey of chronic obstructive pulmonary disease (COPD) patients, Health Union reveals a surprising lack of awareness of risk factors and knowledge of diagnosis stage among patients. Results demonstrate a severe impact on quality of life, employment, and ability to afford treatment.

RA In America: National Study Finds Autoimmune Disease Severely Impacts Quality of Life and Employment

May 27, 2015

Researchers found a severe impact on quality of life, employment, and ability to afford treatment for people living with rheumatoid arthritis.

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