Peruse Health Union’s latest news announcements on survey findings, awards, leadership, and more. News media interested in learning more about how Health Union can help them tell the health stories they want to tell can visit our Press Kit and Resource Center for News Media.
Health Union Launches RareDisease.Net
Health Union to Present Poster on IBS at ACG’s Annual Meeting
Survey Reveals Most People with SMA Using New Gene Therapies
Survey: Caregivers Need Emotional Support Resources for Themselves
Survey respondents who are current caregivers identified emotional support for themselves (59%) as the top information or resource they need more of.
Health Union Launches RareDisease.Net
The aim is for anybody living with one of thousands of rare conditions to connect with others in the shared experience of living with a rare condition.
Health Union to Present Poster on IBS at ACG’s Annual Meeting
The research reveals that 40% of survey respondents considered their condition severe and 55% considered their IBS moderate.
Survey Reveals Most People with SMA Using New Gene Therapies
Three-fourths of survey respondents said they currently use an “SMN-enhancing” treatment, while another 19% said they previously used one.
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