Endometriosis In America:

New Health Union survey data helps the healthcare industry better understand and reach people living with endometriosis

For the third year in a row, Health Union has gathered patient-reported data from thousands of real people impacted by endometriosis. The third annual Endometriosis In America survey quantifies the true impact of this condition among patients – going beyond basic demographics and symptoms to establish a deep understanding of the holistic patient journey for those affected and to track trends over time.

The new data from the third annual Endometriosis In America survey reveals deep insights of a population of 1,234 diagnosed respondents, of which only 13%* feel their endo is controlled on their current treatment plan. Ninety percent have used or are currently using a hormone therapy, 70% have had surgery, and 36% have used or are currently using a GnRH agonist/antagonist.

Endometriosis Patient Reported Data
Endometriosis Patient Reported Data
Endometriosis Patient Reported Data

In the survey, people with endometriosis expressed difficulty balancing physical symptoms with their mental health:

“Taking hormones affects my mental health more than living with the symptoms.”

“Often women (as I’ve gathered from support groups online) speak about feeling like fertility/uterus health is placed more important than mental health, and many medications for endometriosis have a negative impact on mental health. We’d like to see more research on that.”

This access to a broad base of knowledge, facts and data gleaned from Health Union’s open online health communities like Endometriosis.net, and syndicated research allows the healthcare industry to harness the power of Health Union’s continuous immersion in the patient experience to deliver smarter insights and implications–so you can spend your time developing the strategies that will make a difference.

*Top 2 box on a 7-pt scale