Debilitating. Frustrating. Devastating. When asked to describe their condition in one word, COPD patients’ choice of words reveals struggle, fear, misery, and helplessness in Health Union’s COPD In America 2018 survey.
For many people living with multiple sclerosis (MS), treatment decisions can often be nuanced and complicated. In April of 2018, the American Academy of Neurology (AAN) released new guidelines about when to begin, change, and end disease-modifying therapies (DMTs) for MS patients. MS In America 2018 results may help the healthcare industry gain a broader understanding of people’s experiences, or lack thereof, with DMTs and other MS treatment options.
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There is a lot of talk in the industry about patient centricity, but is it the reality? We talk about putting the needs of patients first and keeping them central in the business decisions we make across the healthcare industry. However, as we discussed on a panel at this year’s DIA 2018 Global Annual Meeting, somehow in the effort to amplify patient centricity, a critical voice is often underrepresented—the voice of the patient.
A new class of migraine drugs, called anti-CGRPs (calcitonin gene-related peptide) are expected to reinvigorate a market that has been largely dormant for some time. Four biopharma companies, Amgen, Teva, Lilly and Alder are entering the fray. Not surprisingly, the intense competition and pharma investment associated with this market dynamic has led traditional “eyeball driven” publishers, like WebMD, Everyday Health and others on a quest to offer substantially more migraine-related content in reaction to this market opportunity.
“Asthma In America 2018” asked questions about diagnosis, medications, treatments and more to over 800 respondents. Surprisingly, the survey revealed four things people with asthma fear most about their future, all of which have a profound impact on the way they view their condition and rate their quality of life.
IBD In America 2018, a recent survey conducted by Health Union, revealed that 41% of people with inflammatory bowel disease (IBD) say their household finances are significantly impacted by the out-of-pocket costs associated with their condition.
Getting any type of diagnosis is life-changing. When that diagnosis is the “C” word, there’s a heaviness that raises a whole range of emotions and questions often relating more to mortality than morbidity–not to mention there can also be a fair amount of guilt associated with survival. While great strides have been made in the availability and effectiveness of cancer treatments, the psychosocial aspect associated with having cancer hasn’t kept pace.
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Imagine buying a house without seeing it in person, and without knowing the price or monthly payments. Imagine taking a job without knowing the people, your responsibilities or your salary. Going blind into these momentous decisions without any additional information would be terrifying.