Living With Ankylosing Spondylitis: Jed F
In this podcast interview, Jed shares what his life is like with ankylosing spondylitis, how he was inspired to do advocacy work, and how advocacy has helped him cope with his own challenges.
Seronegative RA and Its Impact on Quality of Life
Survey data shows seronegative RA patients are more likely than those with seropositive rheumatoid arthritis to have been misdiagnosed.
Diagnosis of IBS Is on the Rise, With Little Relief
Since 2017, annual “IBS In America” survey statistics have shown an increased rate of formal IBS diagnosis from a healthcare professional year over year.
Taking Care of the Care Partners
Caregivers are a key component of patient-centered care, and, as such, their role in helping those with chronic conditions should not be overlooked.
Living With RA: Kelly M
Kelly Mack has been living with rheumatoid arthritis since the age of 2, but she hasn’t let it slow her down. She shares about life in her “hot rod” wheelchair, coping with treatment challenges and insensitivities, and how she keeps her positivity throughout it all.
People With Psoriatic Arthritis Are Discussing Financial Topics With Their HCP: What Pharma Can Learn to Better Support Patients
Recent results from Health Union’s Psoriatic Arthritis In America 2019 survey reveal what more than 1,100 people diagnosed with psoriatic arthritis (PsA) want others to know about their condition experience. This year’s survey results show a population of patients who regularly see a healthcare professional for their PsA (97%), in which 66% perceive their condition as moderate and 23% perceive it as severe.
Living With Diabetes: Toby S
Toby Smithson personally lives with diabetes and helps others with diabetes through her work as a registered dietician and certified diabetes educator, as well as her contributions to Type2Diabetes.com.
Living With & Working
Hear from six Health Union contributors — Jed Finley, Jaime Holland, Hess Polanco, Kerrie Smyres, Simon Lord, and Kelly Mack — on how a chronic condition or a life-changing diagnosis has impacted their work in this episode of the Living With podcast.
Advancing Meaningful Patient Engagement Face-to-Face and Heart-to-Heart at Health Union Advocate-Centric Conference in Philadelphia
The third annual HU Connexion is a critical component of the company’s efforts to provide advocates with the tools they need to take home and use in their work as contributors and moderators
A Patient’s Story Amplified: Data, emotion, and the role pharma can play
In case you missed it: There’s another chance to see Health Union’s Digital Pharma East 2019 panel discussion featuring psoriatic disease patient advocate Alisha Bridges. Moderated by Emily Downward, host of the Living With podcast, and including Health Union’s COO, Lauren Lawhon, this candid conversation showcases how integrating patient-reported data with daily social interaction creates meaningful engagement at all points in the patient journey.