When thinking about the resources and the type of attention they need, it’s important to remember that care partners are not simply tools or a way to ensure better patient care. Consistent with the needs of those they care for, care partners – as people – also have needs including physical, emotional, mental and financial.
Kelly Mack has been living with rheumatoid arthritis since the age of 2, but she hasn’t let it slow her down. She shares about life in her “hot rod” wheelchair, coping with treatment challenges and insensitivities, and how she keeps her positivity throughout it all.
Recent results from Health Union’s Psoriatic Arthritis In America 2019 survey reveal what more than 1,100 people diagnosed with psoriatic arthritis (PsA) want others to know about their condition experience. This year’s survey results show a population of patients who regularly see a healthcare professional for their PsA (97%), in which 66% perceive their condition as moderate and 23% perceive it as severe.
Toby Smithson personally lives with diabetes and helps others with diabetes through her work as a registered dietician and certified diabetes educator, as well as her contributions to Type2Diabetes.com.
Hear from six Health Union contributors — Jed Finley, Jaime Holland, Hess Polanco, Kerrie Smyres, Simon Lord, and Kelly Mack — on how a chronic condition or a life-changing diagnosis has impacted their work in this episode of the Living With podcast.
The third annual HU Connexion is a critical component of the company’s efforts to provide advocates with the tools they need to take home and use in their work as contributors and moderators
In case you missed it: There’s another chance to see Health Union’s Digital Pharma East 2019 panel discussion featuring psoriatic disease patient advocate Alisha Bridges. Moderated by Emily Downward, host of the Living With podcast, and including Health Union’s COO, Lauren Lawhon, this candid conversation showcases how integrating patient-reported data with daily social interaction creates meaningful engagement at all points in the patient journey.
Hess Polanco is one of Health Union’s contributors to IrritableBowelSyndrome.net. In this podcast interview, he talks about the stigma of IBS, why it’s important to speak about the condition, as well as how IBS affects him on a daily basis.
Simon Lord was diagnosed with prostate cancer at the age of 50. Fortunately, it was found at an early stage and successfully treated. His experience with prostate cancer inspired him to make changes in his career, and his approach offers inspiration to others facing a difficult diagnosis.
Biologic therapies are a key area of focus in research in inflammatory bowel disease (IBD)–which includes Crohn’s disease and ulcerative colitis–that can be used to treat the disease by reducing inflammation, relieving symptoms, and helping the patient to enter and stay in remission. IBD In America 2019, a Health Union survey of 1,705 people living with a form of IBD, reveal there may be opportunities to help strengthen conversations about biologic therapies between people with IBD and their healthcare professionals (HCP).