Adaptive Engagement and Support in Online Health Communities

The peer-reviewed Journal of Medical Internet Research has published research from Health Union’s online community model.

Chronic Migraine Headaches: Role of Smoking and Locus of Control

The findings of the present study imply that behavioral and psychological interventions can be beneficial for chronic migraines with external locus of control as those interventions can improve not only their psychological wellbeing but also their migraine outcomes.

Perceived Treatment Satisfaction and Effectiveness Facilitators Among Patients With Chronic Health Conditions: A Self-Reported Survey

The aim of this study was to elucidate factors associated with perceived treatment satisfaction and effectiveness among patients with chronic health conditions.

Cancer Survivorship Language Research at APOS

Health Union will share research findings on cancer survivorship language at the American Psychosocial Oncology Society (APOS) 17th Annual Conference.

Facebook advertising to increase online community engagement: Results of the advertisement campaign

Research findings show that Facebook advertising is a feasible recruiting tool for online health communities and, from additional industry and academic research partnership insights, may be leveraged to help future researchers more effectively engage patients to participate in online communities or interventions, ultimately enhancing health outcomes.

Omnipresence of scanxiety for patients with lung cancer and its impact on quality of life

It was found that a large majority of lung cancer patients surveyed reported experiencing scanxiety, with no significant differences in differing type of lung cancer, time since diagnosis, current stage, or scan frequency.

Assessing needs of men following prostate cancer treatment: An exploration of treatment regret

Findings from the study show that patients who are comfortable discussing all aspects of their situation with their healthcare professional report little to no treatment regret compared to all other respondents; supporting a correlation between treatment regret and relationship with healthcare professionals.

Gender disparities in sexual side effect discussions among healthcare professionals and bladder cancer patients

The results of the study displayed that of the respondents with bladder cancer who underwent surgery (n=312), 24% experienced sexual side effects and discussions regarding potential side effects on sex with an HCP occurred more frequently with male patients compared to female patients (n=309).

Living With Ankylosing Spondylitis: Jed F

In this podcast interview, Jed shares what his life is like with ankylosing spondylitis, how he was inspired to do advocacy work, and how advocacy has helped him cope with his own challenges.

Living With RA: Kelly M

Kelly Mack has been living with rheumatoid arthritis since the age of 2, but she hasn’t let it slow her down. She shares about life in her “hot rod” wheelchair, coping with treatment challenges and insensitivities, and how she keeps her positivity throughout it all.