Press Releases

Peruse Health Union’s latest news announcements on survey findings, awards, leadership, and more. News media interested in learning more about how Health Union can help them tell the health stories they want to tell can visit our Press Kit and Resource Center for News Media.

Patients Turn to AI for Health Research but Remain Cautious of Accuracy and Privacy Risks

December 23, 2025

New data from Health Union's survey of over 6,000 patients across 49 chronic conditions shows a rise in "AI-first" information-seeking, while highlighting a critical demand for human-centered oversight and verifiable transparency in digital health tools.

Health Union Launches ATTR-Amyloidosis.net

December 11, 2025

Health Union launches ATTR-Amyloidosis.net, a new digital community offering patients and caregivers reliable resources and essential peer support.

Health Union Recognized for Unmatched Excellence in HCP and Patient Engagement, Earning 19 Awards

November 19, 2025

Health Union has been honored with 19 industry awards, including two Gold distinctions, for elevating the patient voice and providing authentic, community-based resources for chronic health conditions.

Not All Communities Are Created Equal

Health Union Expands Custom Insights Solutions for Patients and Providers

November 3, 2025

Health Union's enhanced research suite expands its core patient and caregiver offerings to fully incorporate HCP insights.

Survey: Caregivers Need Emotional Support Resources for Themselves

November 29, 2022

Survey respondents who are current caregivers identified emotional support for themselves (59%) as the top information or resource they need more of.

Health Union Launches RareDisease.Net

November 17, 2022

The aim is for anybody living with one of thousands of rare conditions to connect with others in the shared experience of living with a rare condition.

A woman gives a presentation

Health Union to Present Poster on IBS at ACG’s Annual Meeting

October 24, 2022

The research reveals that 40% of survey respondents considered their condition severe and 55% considered their IBS moderate.

Survey Reveals Most People with SMA Using New Gene Therapies

October 19, 2022

Three-fourths of survey respondents said they currently use an “SMN-enhancing” treatment, while another 19% said they previously used one.