Mitigating the Misdiagnosis Journey
Nearly half of IBD In America 2020 respondents living with Crohn’s disease said they were previously misdiagnosed during their diagnosis journey.
Posts
Fibromyalgia comorbidity in a community sample of adults with migraine
Partnering with University of Pittsburgh, this manuscript was published in Clinical Rheumatology in 2013, showcasing data from Health Union’s Insights from online Migraine communities.
Fibromyalgia family and relationship impact exploratory survey
The results of this study suggest that in addition to physical impairments that are well documented among individuals with fibromyalgia, fibromyalgia can result in a substantial negative impact on important relationships with family and close friends.
Podcast
Living With Fibromyalgia: Kristal Kent
The 2022 Social Health Award for Lifetime Achievement goes to Kristal Kent, who engages in legislative and healthcare advocacy to help the fibromyalgia and veteran communities. After developing fibromyalgia during her own military service, she has worked tirelessly to provide her communities with up to date information and connect individuals living with fibromyalgia/chronic pain throughout the world.
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Living With Fibromyalgia: Mildred Velez
Mildred Velez is the founder of the Fibromyalgia Care Society of America, winners of Best Team in the 2022 Social Health Awards. Milly shares about her personal journey with fibromyalgia and how the FCSA supports others with the condition.
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Living With Disability & Chronic Pain: Jill King
The 2022 Social Health Award winner for Rookie of the Year is Jill King. Jill talks about how her advocacy work has helped her and others living with disability and the importance of finding and building community when living with challenges.
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Living With Fibromyalgia – Melissa Talwar
Melissa Talwar is the 2022 Social Health Award winner for Advocacy Trailblazer. Melissa shares how her own health challenges inspire her to advocate for others and how the Support Fibromyalgia Network supports and educates those with fibromyalgia while raising awareness and advocating for better treatments and research.
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