Condition-Specific, Patient-Reported Syndicated Research

Get timely, relevant, patient-reported data and insights that illuminate the patient experience

Health Union conducts two types of condition-specific, syndicated reports covering 40+ conditions: In America and Patient Experience. Choose one or both syndicated reports, uniquely designed to answer important business questions about the patient experience, from patients themselves.

In America

  • Thousands of respondents
  • High-level findings for 50+ conditions
  • Paves the way for a more holistic understanding of patients across multiple comorbidities
  • Separate Rare Disease In America survey fielded to understand specifics related to the rare disease patient experience

Patient Experience

  • Hundreds of respondents
  • IRB-approved
  • In-depth insights into quality of life impact,  unmet needs, HCP dynamics and relationship, disease burden, and treatment experiences
  • Features quota-sampling to better represent important subgroups

View the full range of available condition-specific reports

Sample Sizes for
Advanced Breast Cancer

Sample Sizes for
Advanced Breast Cancer

2024: 416  2023: 281  2022: 486

2024: 416  2023: 281  2022: 486

Sample Sizes for Breast Cancer Patient Experience

Sample Sizes for Breast Cancer
Patient Experience

2024: 280

2024: 280

Sample Sizes for
Advanced Ovarian Cancer

Sample Sizes for
Advanced Ovarian Cancer

2024: 104  2023: 166  2022: 205  2021: 153

2024: 104  2023: 166  2022: 205  2021: 153

Sample Sizes for Atrial Fibrillation

Sample Sizes for Atrial Fibrillation

2024: 766 

2024: 766 

Sample Sizes for Allergies

Sample Sizes for Allergies

2024: 3,648  2023: 3,006  2021: 1,021

2024: 3,648  2023: 3,006  2021: 1,021

Sample Sizes for
Alzheimer’s Disease

Sample Sizes for Alzheimer’s
Disease

2024: 417  2023: 500

2024: 417  2023: 500

Sample Sizes for Asthma

Sample Sizes for Asthma

2024: 2,143  2023: 1,536  2021: 1,045

2024: 2,143  2023: 1,536  2021: 1,045

Sample Sizes for
Atopic Dermatitis

2024: 648  2023: 556  2021: 770

2024: 648  2023: 556  2021: 770

Sample Sizes for Atopic Dermatitis Patient Experience

Sample Sizes for Atopic Dermatitis
Patient Experience

2024: 307

2024: 307

Sample Sizes for
Axial Spondyloarthritis and Ankylosing Spondylitis

Sample Sizes for
Axial Spondyloarthritis and
Ankylosing Spondylitis

2024: 717  2023: 681  2021: 1,009

2024: 717  2023: 681  2021: 1,009

Sample Sizes for
Bipolar Disorder

Sample Sizes for
Bipolar Disorder

2024: 607

2024: 607  

Sample Sizes for
Bladder Cancer

Sample Sizes for
Bladder Cancer

2024: 601  2023: 465

2024: 601  2023: 465

Sample Sizes for
Blood Cancer

Sample Sizes for
Blood Cancer

Acute Myeloid Leukemia

2024: 71  2023: 81  2022: 71  2021: 82


Chronic Lymphocytic Leukemia

2024: 267  2023: 244  2022: 203  2021: 236


Chronic Myelogenous Leukemia

2024: 124  2023: 91  2022: 74  2021: 120


Multiple Myeloma

2024: 318  2023: 332  2022: 313  2021: 370


Myelodysplastic Syndromes

2024: 112  2023: 91  2022: 87  2021: 84


Myeloproliferative Neoplasms

2024: 156  2023: 117  2022: 193  2021: 250


Non-Hodgkin Lymphoma

2024: 292  2023: 246  2022: 3,216  2021: 288

Acute Myeloid Leukemia

2024: 71  2023: 81  2022: 71  2021: 82


Chronic Lymphocytic Leukemia

2024: 267  2023: 244  2022: 203  2021: 236


Chronic Myelogenous Leukemia

2024: 124  2023: 91  2022: 74  2021: 120


Multiple Myeloma

2024: 318  2023: 332  2022: 313  2021: 370


Myelodysplastic Syndromes

2024: 112  2023: 91  2022: 87  2021: 84


Myeloproliferative Neoplasms

2024: 156  2023: 117  2022: 193  2021: 250


Non-Hodgkin Lymphoma

2024: 292  2023: 246  2022: 3,216  2021: 288

Sample Sizes for MM
Patient Experience

Sample Sizes for MM
Patient Experience

2023: 264

2023: 264

Sample Sizes for
Chronic Dry Eye

Sample Sizes for
Chronic Dry Eye

2024: 2,198  2023: 1,732  2022: 246  2021: 415

2024: 2,198  2023: 1,732  2022: 246  2021: 415

Sample Sizes for
Chronic Hives

Sample Sizes for
Chronic Hives

2024: 165  2023: 140  2022: 201

2024: 165  2023: 140  2022: 201

Sample Sizes for
Chronic Kidney Disease

Sample Sizes for
Chronic Kidney Disease

2024: 1,256

2024: 1,256

Sample Sizes for COPD

Sample Sizes for COPD

2024: 3,395  2023: 4,073  2022: 1,802 

2024: 3,395  2023: 4,073  2022: 1,802 

Sample Sizes for
Cystic Fibrosis

Sample Sizes for
Cystic Fibrosis

2024: 138  2023: 170  2022: 230 

2024: 138  2023: 170  2022: 230 

Sample Sizes for Endometriosis

Sample Sizes for Endometriosis

2024: 1,003  2023: 735  2021: 1,027

2024: 1,003  2023: 735  2021: 1,027

Sample Sizes for Epilepsy

Sample Sizes for Epilepsy

2024: 530  2023: 556  2022: 308  2021: 415

2024: 530  2023: 556  2022: 308  2021: 415

Sample Sizes for
Heart Failure

Sample Sizes for
Heart Failure

2024: 844  2023: 768  2021: 846

2024: 844  2023: 768  2021: 846

Sample Sizes for Hepatitis C

Sample Sizes for Hepatitis C

2024: 170  2023: 151  

2024: 170  2023: 151  

Sample Sizes for
Hidradenitis Suppurativa

Sample Sizes for
Hidradenitis Suppurativa

2024: 450  2023: 304  2021: 438

2024: 450  2023: 304  2021: 438

Sample Sizes for HS
Patient Experience

Sample Sizes for HS
Patient Experience

2024: 221

2024: 221

Sample Sizes for HIV

Sample Sizes for HIV

2024: 372  2023: 404  2022: 426 

2024: 372  2023: 404  2022: 426 

Sample Sizes for IBD

Sample Sizes for IBD

2024: 1,598
(CD n=711; UC n=488; Other n=399)

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

2024: 1,598
((CD n=711; UC n=488; Other n=399)

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

Sample Sizes for IBS

Sample Sizes for IBS

2024: 3,518  2023: 2,641  2022: 1,478

2024: 3,518  2023: 2,641  2022: 1,478

Sample Sizes for
Lung Cancer (NSCLC)
In America

Sample Sizes for
Lung Cancer (NSCLC)
In America

2024: 403  2023: 466  2022: 428

2024: 403  2023: 466  2022: 428

Sample Sizes for
Lung Cancer (NSCLC)
Patient Experience

Sample Sizes for
Lung Cancer (NSCLC)
Patient Experience

2023: 262

2023: 262

Sample Sizes for Lupus

Sample Sizes for Lupus

2024: 1,381  2023: 902  2021: 836

2024: 1,381  2023: 902  2021: 836

Sample Sizes for Lupus
Patient Experience

Sample Sizes for Lupus
Patient Experience

2023: 400

2023: 400

Sample Sizes for
Macular Degeneration

Sample Sizes for
Macular Degeneration

2024: 1,394  2023: 924

2024: 1,394  2023: 924

Sample Sizes for
Major Depressive Disorder (Depression)

Sample Sizes for
Major Depressive Disorder (Depression)

2024: 3,640  

2024: 3,640  

Sample Sizes for Migraine

Sample Sizes for Migraine

2024: 4,922  2023: 4,416  2022: 4,249  2021: 4,992

2024: 4,922  2023: 4,416  2022: 4,249  2021: 4,992

Sample Sizes for Migraine
Patient Experience

Sample Sizes for Migraine
Patient Experience

2023: 500

2023: 500

Sample Sizes for
Multiple Sclerosis

Sample Sizes for
Multiple Sclerosis

2024: 4,574  2023: 3,883  2022: 4,478  2021: 4,525

2024: 4,574  2023: 3,883  2022: 4,478  2021: 4,525

Sample Sizes for
Myasthenia Gravis

Sample Sizes for
Myasthenia Gravis

2024: 999  2023: 662  2022: 547  2021: 600

2024: 999  2023: 662  2022: 547  2021: 600

Sample Sizes for Neuromyelitis Optica

Sample Sizes for
Neuromyelitis Optica

2024: 90  2023: 66  2022: 61

2024: 90  2023: 66  2022: 61

Sample Sizes for Obesity

Sample Sizes for Obesity

2024: 2,552  

2024: 2,552  

Sample Sizes for
Parkinson’s Disease

Sample Sizes for
Parkinson’s Disease

2024: 1,954  2023: 1,611  2022: 1,169

2024: 1,954  2023: 1,611  2022: 1,169

Sample Sizes for Postpartum
Depression Disorder

Sample Sizes for Postpartum
Depression Disorder

2024: 254

2024: 254

Sample Sizes for
Prostate Cancer

Sample Sizes for
Prostate Cancer

2024: 1,445  2023: 978  2022: 765

2024: 1,445  2023: 978  2022: 765

Sample Sizes for Psoriasis

Sample Sizes for Psoriasis

2024: 662  2023: 490  2022: 818  2021: 1,123

2024: 662  2023: 490  2022: 818  2021: 1,123

Sample Sizes for
Psoriatic Arthritis

Sample Sizes for
Psoriatic Arthritis

2024: 1,117  2023: 1,160  2022: 819  2021: 973

2024: 1,117  2023: 1,160  2022: 819  2021: 973

Sample Sizes for
Rare Disease

Sample Sizes for
Rare Disease

2024: 2,174  2023: 494  

2024: 2,174  2023: 494  

Sample Sizes for
Rheumatoid Arthritis

Sample Sizes for
Rheumatoid Arthritis

2024: 3,560  2023: 2,842  2022: 2,674  2021: 3,856

2024: 3,560  2023: 2,842  2022: 2,674  2021: 3,856

Sample Sizes for
Schizophrenia

Sample Sizes for
Schizophrenia

2024: 82  

2024: 82  

Sample Sizes for
Sickle Cell Disease

Sample Sizes for
Sickle Cell Disease

2024: 71  2023: 155  2022: 82  2021: 111

2024: 71  2023: 155  2022: 82  2021: 111

Sample Sizes for
Skin Cancer (Melanoma)

Sample Sizes for
Skin Cancer (Melanoma)

2024: 331  2023: 378

2024: 331  2023: 378

Sample Sizes for
Sleep Disorders-Sleep Apnea

Sample Sizes for
Sleep Disorders-Sleep Apnea

2024: 2,184  2023: 1,734  2021: 734

2024: 2,184  2023: 1,734  2021: 734

Sample Sizes for
Sleep Disorders-Insomnia

Sample Sizes for
Sleep Disorders-Insomnia

2024: 3,858  2023: 2,713  2021: 508

2024: 3,858  2023: 2,713  2021: 508

Sample Sizes for
Sleep Disorders-Narcolepsy

Sample Sizes for
Sleep Disorders-Narcolepsy

2024: 409  2023: 349  2021: 177

2024: 409  2023: 349  2021: 177

Sample Sizes for
Sleep Disorders-Restless Legs Syndrome

Sample Sizes for
Sleep Disorders-Restless Legs Syndrome

2024: 1,093  2023: 898  2021: 317

2024: 1,093  2023: 898  2021: 317

Sample Sizes for
Spinal Muscular Atrophy

Sample Sizes for
Spinal Muscular Atrophy

2024: 64  2023: 83  2022: 54

2024: 64  2023: 83  2022: 54

Sample Sizes for
Thyroid Eye Disease

Sample Sizes for
Thyroid Eye Disease

2024: 147  2023: 154  2022: 100

2024: 147  2023: 154  2022: 100

Sample Sizes for
Type 2 Diabetes

Sample Sizes for
Type 2 Diabetes

2024: 2,968  2023: 2,435

2024: 2,968  2023: 2,435

View condition-specific In America infographics

FAQs

Surveys are fielded within each condition-specific online health community website and promoted via email, Facebook and other social media channels associated with the particular community.

Health Union conducts the In America survey every year, as well as up to four condition-specific Patient Experience surveys. Conditions of focus for Patient Experience surveys are selected based on anticipated changes in treatment landscape or promising clinical trials/research, so that an updated understanding of the patient experience can support evolving condition dynamics.

Primarily, the data collected is used to inform the content strategy and topics of interest for the community. Results are shared back to the community in many different forms to encourage engagement.

The data is also analyzed to develop custom media programs designed to reach the right people in the right moment with highly relevant advertising.

The aggregate survey data can be purchased as a syndicated study to interested partners who want to learn more about patient or caregiver experiences with a given condition. As with all syndicated studies, results are shared on aggregate; individual responses are confidential and never shared or sold for any reason.

There is no paid incentive for completing an In America survey. Respondents who complete the longer, more in-depth Patient Experience survey are provided an incentive. In both cases, each person that takes a survey contributes to a better understanding of their condition and can help others feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey can be, as well as the differences that make each journey unique. 

Yes! Health Union publishes data in peer-reviewed journals and at industry and condition-specific conferences to advance the knowledge and understanding of the patient and caregiver experience. Visit our publications page to read more. 

There are a range of options available. For more information, please fill out the form at the bottom of this page.

Yes, Health Union has a full-service marketing research insights team. For more information, please fill out the form at the bottom of this page.

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