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Kaitlyn Sullivan2026-02-10 15:40:012026-02-22 20:16:55Not All Community Platforms Are Created EqualHealth Union’s data-driven industry conversations help pharma make smarter, more effective decisions.
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Kaitlyn Sullivan
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Kaitlyn Sullivan2026-02-10 15:40:012026-02-22 20:16:55Not All Community Platforms Are Created Equal
Leading With Lived Experience: Why Rare Disease Leadership Starts With Patients

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IBS Patient-Reported Survey Data 2020
Merely 9% of people living with IBS were currently taking a prescription IBS medication, according to new Health Union patient-reported survey data.
Alzheimer’s Disease Patient-Reported Survey Data | 2020
Only 11% of people living with Alzheimer’s disease feel controlled on their current treatment plan, according to Health Union patient-reported survey data.
COPD Patient-Reported Survey Data | 2020
44% of people living with COPD who experience pain consider themselves as having chronic pain, according to new Health Union survey data.
Multiple Sclerosis Patient-Reported Survey Data | 2020
71% of people living with multiple sclerosis currently use a DMT but many live with pain and emotional grief, according to new Health Union survey data.
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