Health Union Launches RareDisease.Net
The aim is for anybody living with one of thousands of rare conditions to connect with others in the shared experience of living with a rare condition.
Posts
Living with Myeloproliferative Neoplasms Differs from Other Forms of Blood Cancer
Health Union survey shows that, when compared to the more common forms of blood cancer, respondents living with myeloproliferative neoplasms (MPN) appear to have less traditional and, at times, more difficult treatment journeys.
Blood Cancer Patient-Reported Survey Data | 2020
58% of blood cancer patients feel satisfied with their current treatment plan, according to new Health Union survey data from its online health community.
Half of Blood Cancer Cases Detected Incidentally
Survey reveals a 50-50 split between blood cancer being detected after experiencing symptoms, and as a result of other unrelated or incidental situations.
Inaugural ‘Blood Cancer In America’ Survey Finds Patients Maintain Positive Views of Condition Being ‘Under Control’
Despite the physical, emotional and social challenges faced, three-fifths of people living with blood cancer feel that their condition is under control with current treatment plans, according to Blood Cancer In America 2018, a national survey by Health Union, LLC of people diagnosed with the condition and caregivers.
Podcast
Living With CML: Brian Boyle
Brian Boyle is a professional hockey player who is living with Philadelphia-chromosome-positive chronic myeloid leukemia in chronic phase (Ph+ CML-CP). He shares how he coped with the diagnosis and the importance of support along the way. This episode is sponsored by Novartis, and Brian has been compensated by Novartis for participating. Brian’s story is based on his experience with Ph+ CML and is not intended to be representative of others’ experience. Please see the full Prescribing Information, including the Boxed WARNING and medication guide, available at https://bit.ly/38GEubJ. 12/20 AM7-1239628
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