Condition-Specific, Patient-Reported Syndicated Research

Get timely, relevant, patient-reported data and insights that illuminate the patient experience

Health Union conducts two types of condition-specific, syndicated reports covering 50+ conditions: In America and Patient Experience. Choose one or both syndicated reports, uniquely designed to answer important business questions about the patient experience, from patients themselves.

In America

Thousands of respondents
High-level findings for 50+ conditions
Paves the way for a more holistic understanding of patients across multiple comorbidities
Separate Rare Disease In America survey fielded to understand specifics related to the rare disease patient experience

Patient Experience

Hundreds of respondents
IRB-approved
In-depth insights into quality of life impact, unmet needs, HCP dynamics and relationship, disease burden, and treatment experiences
Features quota-sampling to better represent important subgroups

View the full range of available condition-specific reports

Sample Sizes for
Advanced Breast Cancer

2024: 416 2023: 281 2022: 486

Sample Sizes for Breast Cancer Patient Experience

Sample Sizes for Breast Cancer
Patient Experience

2024: 280

Sample Sizes for
Advanced Ovarian Cancer

2024: 104 2023: 166 2022: 205 2021: 153

Sample Sizes for Atrial Fibrillation

2024: 766

Sample Sizes for Allergies

2024: 3,648 2023: 3,006 2021: 1,021

Sample Sizes for
Alzheimer’s Disease

Sample Sizes for Alzheimer’s
Disease

2024: 417 2023: 500

Sample Sizes for Asthma

2024: 2,143 2023: 1,536 2021: 1,045

Sample Sizes for
Atopic Dermatitis

2024: 648 2023: 556 2021: 770

Sample Sizes for Atopic Dermatitis Patient Experience

Sample Sizes for Atopic Dermatitis
Patient Experience

2024: 307

Sample Sizes for
Axial Spondyloarthritis and Ankylosing Spondylitis

Sample Sizes for
Axial Spondyloarthritis and
Ankylosing Spondylitis

2024: 717 2023: 681 2021: 1,009

Sample Sizes for
Bipolar Disorder

2024: 607

Sample Sizes for
Bladder Cancer

2024: 601 2023: 465

Sample Sizes for
Blood Cancer

Acute Myeloid Leukemia

2024: 71 2023: 81 2022: 71 2021: 82

Chronic Lymphocytic Leukemia

2024: 267 2023: 244 2022: 203 2021: 236

Chronic Myelogenous Leukemia

2024: 124 2023: 91 2022: 74 2021: 120

Multiple Myeloma

2024: 318 2023: 332 2022: 313 2021: 370

Myelodysplastic Syndromes

2024: 112 2023: 91 2022: 87 2021: 84

Myeloproliferative Neoplasms

2024: 156 2023: 117 2022: 193 2021: 250

Non-Hodgkin Lymphoma

2024: 292 2023: 246 2022: 3,216 2021: 288

Acute Myeloid Leukemia

2024: 71 2023: 81 2022: 71 2021: 82

Chronic Lymphocytic Leukemia

2024: 267 2023: 244 2022: 203 2021: 236

Chronic Myelogenous Leukemia

2024: 124 2023: 91 2022: 74 2021: 120

Multiple Myeloma

2024: 318 2023: 332 2022: 313 2021: 370

Myelodysplastic Syndromes

2024: 112 2023: 91 2022: 87 2021: 84

Myeloproliferative Neoplasms

2024: 156 2023: 117 2022: 193 2021: 250

Non-Hodgkin Lymphoma

2024: 292 2023: 246 2022: 3,216 2021: 288

Sample Sizes for MM
Patient Experience

2023: 264

Sample Sizes for
Chronic Dry Eye

2024: 2,198 2023: 1,732 2022: 246 2021: 415

Sample Sizes for
Chronic Hives

2024: 165 2023: 140 2022: 201

Sample Sizes for
Chronic Kidney Disease

2024: 1,256

Sample Sizes for COPD

2024: 3,395 2023: 4,073 2022: 1,802

Sample Sizes for
Cystic Fibrosis

2024: 138 2023: 170 2022: 230

Sample Sizes for Endometriosis

2024: 1,003 2023: 735 2021: 1,027

Sample Sizes for Epilepsy

2024: 530 2023: 556 2022: 308 2021: 415

Sample Sizes for
Heart Failure

2024: 844 2023: 768 2021: 846

Sample Sizes for Hepatitis C

2024: 170 2023: 151

Sample Sizes for
Hidradenitis Suppurativa

2024: 450 2023: 304 2021: 438

Sample Sizes for HS
Patient Experience

2024: 221

Sample Sizes for HIV

2024: 372 2023: 404 2022: 426

Sample Sizes for IBD

2024: 1,598
(CD n=711; UC n=488; Other n=399)

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

2024: 1,598
((CD n=711; UC n=488; Other n=399)

2023: 1,392
(CD n=659, UC n=452, Other n=281)

2022: 1,249
(CD n=672, UC n=426, Other n=151)

2021: 1,328
(CD n=796, UC n=413, Other n=119)

Sample Sizes for IBS

2024: 3,518 2023: 2,641 2022: 1,478

Sample Sizes for
Lung Cancer (NSCLC)
In America

2024: 403 2023: 466 2022: 428

Sample Sizes for
Lung Cancer (NSCLC)
Patient Experience

2023: 262

Sample Sizes for Lupus

2024: 1,381 2023: 902 2021: 836

Sample Sizes for Lupus
Patient Experience

2023: 400

Sample Sizes for
Macular Degeneration

2024: 1,394 2023: 924

Sample Sizes for
Major Depressive Disorder (Depression)

2024: 3,640

Sample Sizes for Migraine

2024: 4,922 2023: 4,416 2022: 4,249 2021: 4,992

Sample Sizes for Migraine
Patient Experience

2023: 500

Sample Sizes for
Multiple Sclerosis

2024: 4,574 2023: 3,883 2022: 4,478 2021: 4,525

Sample Sizes for
Myasthenia Gravis

2024: 999 2023: 662 2022: 547 2021: 600

Sample Sizes for Neuromyelitis Optica

Sample Sizes for
Neuromyelitis Optica

2024: 90 2023: 66 2022: 61

Sample Sizes for Obesity

2024: 2,552

Sample Sizes for
Parkinson’s Disease

2024: 1,954 2023: 1,611 2022: 1,169

Sample Sizes for Postpartum
Depression Disorder

2024: 254

Sample Sizes for
Prostate Cancer

2024: 1,445 2023: 978 2022: 765

Sample Sizes for Psoriasis

2024: 662 2023: 490 2022: 818 2021: 1,123

Sample Sizes for
Psoriatic Arthritis

2024: 1,117 2023: 1,160 2022: 819 2021: 973

Sample Sizes for
Rare Disease

2024: 2,174 2023: 494

Sample Sizes for
Rheumatoid Arthritis

2024: 3,560 2023: 2,842 2022: 2,674 2021: 3,856

Sample Sizes for
Schizophrenia

2024: 82

Sample Sizes for
Sickle Cell Disease

2024: 71 2023: 155 2022: 82 2021: 111

Sample Sizes for
Skin Cancer (Melanoma)

2024: 331 2023: 378

Sample Sizes for
Sleep Disorders-Sleep Apnea

2024: 2,184 2023: 1,734 2021: 734

Sample Sizes for
Sleep Disorders-Insomnia

2024: 3,858 2023: 2,713 2021: 508

Sample Sizes for
Sleep Disorders-Narcolepsy

2024: 409 2023: 349 2021: 177

Sample Sizes for
Sleep Disorders-Restless Legs Syndrome

2024: 1,093 2023: 898 2021: 317

Sample Sizes for
Spinal Muscular Atrophy

2024: 64 2023: 83 2022: 54

Sample Sizes for
Thyroid Eye Disease

2024: 147 2023: 154 2022: 100

Sample Sizes for
Type 2 Diabetes

2024: 2,968 2023: 2,435

FAQs

Where and how are In America and Patient Experience surveys fielded?

Surveys are fielded within each condition-specific online health community website and promoted via email, Facebook and other social media channels associated with the particular community.

How often does Health Union conduct these surveys?

Health Union conducts the In America survey every year, as well as up to four condition-specific Patient Experience surveys. Conditions of focus for Patient Experience surveys are selected based on anticipated changes in treatment landscape or promising clinical trials/research, so that an updated understanding of the patient experience can support evolving condition dynamics.

What does Health Union do with the In America data that is collected?

Primarily, the data collected is used to inform the content strategy and topics of interest for the community. Results are shared back to the community in many different forms to encourage engagement.

The data is also analyzed to develop custom media programs designed to reach the right people in the right moment with highly relevant advertising.

The aggregate survey data can be purchased as a syndicated study to interested partners who want to learn more about patient or caregiver experiences with a given condition. As with all syndicated studies, results are shared on aggregate; individual responses are confidential and never shared or sold for any reason.

Do respondents receive an incentive for taking these surveys?

There is no paid incentive for completing an In America survey. Respondents who complete the longer, more in-depth Patient Experience survey are provided an incentive. In both cases, each person that takes a survey contributes to a better understanding of their condition and can help others feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey can be, as well as the differences that make each journey unique.

Can this data be used for publication?

Yes! Health Union publishes data in peer-reviewed journals and at industry and condition-specific conferences to advance the knowledge and understanding of the patient and caregiver experience. Visit our publications page to read more.

How can healthcare companies purchase syndicated research reports?

There are a range of options available. For more information, please fill out the form at the bottom of this page.

In addition to In America and Patient Experience, does Health Union conduct other research?

Yes, Health Union has a full-service marketing research insights team. For more information, please fill out the form at the bottom of this page.

Want to learn more?

Make your strategies smarter with Health Union’s syndicated research. Fill out the form below to continue the conversation with one of our team members.

Condition-Specific, Patient-Reported Syndicated Research

View the full range of available condition-specific reports

View condition-specific In America infographics

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