Health Union’s Published Research

Browse the full list below of research conducted by Health Union that has been accepted and published across peer-reviewed academic journals and conferences.
Access the bibliography for all research.

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Childhood onset migraine and adult outcomes: A retrospective survey

March 21, 2019

Partnering with University of Chung-Ang and University of Colorado, this abstract showcases data from Health Union's Migraine In America 2015 survey.

Visualizing the Patient Experience: How meaningful illustrations deliver unmatched impact

February 19, 2019

In this Q&A, Harris, who now oversees an entire creative team who creates unique illustrations every day for each of Health Union’s 20 online health communities (and growing), reveals what it took to accomplish his creative vision that continuously maintains a laser focus on the patient experience.

Impact on interpersonal relationships among caregivers and patients with multiple sclerosis

January 21, 2019

The survey results found that participants had few negative perceptions of relationships with romantic partners/children/close friends, but described the impact of fatigue and limited mobility as feelings of being not well understood by others, burdensome and isolated.

Misperceptions regarding palliative and hospice care among cancer patients — What can we learn from patient-reported treatment decision making

December 21, 2018

This abstract was published at the NCCN 2019 Annual Meeting, showcasing data from Health Union's Impact of Cancer survey.

Omnipresence of scanxiety for patients with lung cancer and its impact on quality of life

December 18, 2019

It was found that a large majority of lung cancer patients surveyed reported experiencing scanxiety, with no significant differences in differing type of lung cancer, time since diagnosis, current stage, or scan frequency.

Assessing needs of men following prostate cancer treatment: An exploration of treatment regret

December 18, 2019

Findings from the study show that patients who are comfortable discussing all aspects of their situation with their healthcare professional report little to no treatment regret compared to all other respondents; supporting a correlation between treatment regret and relationship with healthcare professionals.

Gender disparities in sexual side effect discussions among healthcare professionals and bladder cancer patients

December 18, 2019

The results of the study displayed that of the respondents with bladder cancer who underwent surgery (n=312), 24% experienced sexual side effects and discussions regarding potential side effects on sex with an HCP occurred more frequently with male patients compared to female patients (n=309).

Living With Ankylosing Spondylitis: Jed F

December 18, 2019

In this podcast interview, Jed shares what his life is like with ankylosing spondylitis, how he was inspired to do advocacy work, and how advocacy has helped him cope with his own challenges.

Health Union’s Published Research

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